Great Plains American Indians' Perspectives on Patient and Family Needs Throughout the Cancer Journey.
Great Plains American Indians' Perspectives on Patient and Family Needs Throughout the Cancer Journey.
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DOI：
10.1188/23.onf.279-289
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发表时间：
2023-04-21
影响因子：
1.9
通讯作者：
Daubman, Bethany-Rose
中科院分区：
文献类型：
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作者：
Isaacson, Mary J.;Duran, Tinka;Johnson, Gina R.;Soltoff, Alexander;Jackson, Sean M.;Purvis, Sara J.;Sargent, Michele;LaPlante, J. R.;Petereit, Daniel G.;Armstrong, Katrina;Daubman, Bethany-Rose
探讨癌症治疗期间患者和家庭需求的观点，以及美国印第安人（AI）癌症幸存者，护理人员，部落领袖和治疗师的生存情况。36名AI癌症幸存者来自大平原地区的三个保留地。一个以社区为基础的参与性研究设计。后殖民土著研究技术的谈话圈和半结构化的采访被用来收集定性数据。数据进行了分析，使用内容分析，以确定主题。确定了伴奏的总主题。下列主题与这一主题相互交织：（a）家庭保健的需要，以及家庭支助和症状管理的次主题;（B）病人和家庭教育。为了在其家庭社区为AI患者提供高质量的癌症护理，肿瘤临床医生应与当地护理提供者、相关组织和印度卫生服务局合作，以确定和开发基本服务。未来的努力必须强调文化上敏感的干预措施，其中部落社区卫生工作者作为导航员，在治疗和生存期间陪伴患者和家属。
To explore the perspectives on patient and family needs during cancer treatment and survivorship of American Indian (AI) cancer survivors, caregivers, Tribal leaders, and healers. 36 AI cancer survivors from three reservations in the Great Plains region. A community-based participatory research design was employed. Postcolonial Indigenous research techniques of talking circles and semistructured interviews were used to gather qualitative data. Data were analyzed using content analysis to identify themes. The overarching theme of accompaniment was identified. The following themes were intertwined with this theme: (a) the need for home health care, with the subthemes of family support and symptom management; and (b) patient and family education. To provide high-quality cancer care to AI patients in their home communities, oncology clinicians should collaborate with local care providers, relevant organizations, and the Indian Health Service to identify and develop essential services. Future efforts must emphasize culturally responsive interventions in which Tribal community health workers serve as navigators to accompany patients and families during treatment and in survivorship.