Personal, familial and social resources and health-related quality of life in children and adolescents with chronic conditions
Personal, familial and social resources and health-related quality of life in children and adolescents with chronic conditions
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DOI：
10.1007/s00103-008-0537-2
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发表时间：
2008-06-01
影响因子：
1.7
通讯作者：
Kurth, B. -M.
中科院分区：
文献类型：
--
作者：
Hoelling, H.;Schlack, R.;Kurth, B. -M.
本出版物描述了儿童和青少年慢性疾病（哮喘，and，肥胖）与个人，家庭和社会资源以及与健康相关的生活质量（HRQOL）的关系。这些调查的一个数据库是德国儿童和青少年健康访谈和检查调查（KiGGS），该调查对0至17岁的青少年具有代表性。上述慢性疾病在这一年龄组中经常发生，并被认为对生活质量有影响，与保护因素水平较低有关。方法采用参加KiGGS研究的6813名11 ~ 17岁儿童和青少年的资料进行调查。在计算机辅助医疗访谈（CAPI）的框架内，通过填写问卷，由父母提供有关诊断出的慢性病的信息。青少年自己填写问卷，评估个人、家庭和社会保护因素以及生活质量。使用的工具有社会支持量表、家庭气候量表和KINDL-R。结果儿童和青少年哮喘患者在健康相关生活质量和保护因素方面似乎没有缺陷。这与肥胖儿童和患有AND的儿童的情况不同。两组患者在健康相关的生活质量和保护因素方面均存在显著缺陷。所调查的慢性疾病在测量保护因素和健康相关生活质量的量表值方面存在显著差异。可能的解释是：对于哮喘作为一种具有躯体表现的慢性疾病，存在有效的治疗和疗法，因此它对自我评估的生活质量几乎没有影响。慢性阻塞性肺病和肥胖导致生活质量下降，在保护因素方面，可能是由于社会对有关儿童和青少年的污名化、孤立和丧失动力造成的。因此，重要的是支持这些儿童和青少年处理与疾病有关的问题。结果表明，除了慢性病对有关儿童及其家庭的直接影响外，还应在进一步的研究中具体处理生活质量以及家庭和社会环境。
Introduction The present publication describes chronic conditions of children and adolescents (asthma, AND, obesity) in relation to personal, familial and social resources and to health-related quality of life (HRQOL). A database of these investigations is the German health interview and examination survey of children and adolescents (KiGGS), which is representative for 0 to 17 year-olds. The above mentioned chronic conditions occur frequently in this age group and are assumed to have an influence on quality of life and to be related to a lower level of protective factors. Methods The investigations used the data of 6813 children and adolescents within the age group of 11 to 17 who participated in the KiGGS study. Information about diagnosed chronic conditions was given by the parents within the framework of the computer-assisted medical interview (CAPI) and by completing questionnaires. The personal, familial and social protection factors as well as the quality of life were assessed by the questionnaires, filled in by the adolescents themselves. Instruments used were the Social Support Scale, the Family Climate Scale and KINDL-R. Results Children and adolescents with asthma seem to have no deficits in the health-related quality of life and in the field of protective factors. This differs from the situation of the obese children as well as from the children with AND. Both groups show significant deficits in the health-related quality of life and protection factors. Discussion The chronic conditions investigated show remarkable differences in the scale values for measuring protective factors and health-related quality of life. Possible explanations are: For asthma as a chronic disease with somatic manifestation effective treatments and therapies exist, so that it has nearly no influence on the self-assessed quality of life. AND and obesity result in a decrease of quality of life and in the field of protective factors, possibly caused by social stigmatisation, isolation and demotivation of the concerned children and adolescents. Therefore it is important to support those children and adolescents to cope with their disease-related problems. The results illustrate that in addition to the immediate effects of chronic conditions on the concerned children and their families, it is the quality of life and the familial and social environment that should be specifically addressed in further studies.