Anticipated and Perceived Stigma Among Patients With Psoriasis.
Anticipated and Perceived Stigma Among Patients With Psoriasis.
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DOI：
10.1177/2475530320924009
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发表时间：
2020-07
影响因子：
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通讯作者：
Gelfand JM
中科院分区：
文献类型：
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作者：
Wan MT;Pearl RL;Chiesa Fuxench ZC;Takeshita J;Gelfand JM
银屑病（PWP）患者的耻辱感与较差的生活质量相关。确定PWP期望和经历的来自他人的污名化态度的患病率和预测因素。我们使用经过验证的结果指标进行了一项调查，以评估PWP预测和感知他人耻辱的程度。从电子病历中获得人口统计学和临床特征。患者（n = 106）为48.11%女性，70.75%白色，平均年龄± SD为47.90 ± 16.19岁。其中，25.47%的人自我报告他们的银屑病严重。平均医生总体评估评分± SD为2.98 ± 1.81。三分之二（66.98%）的患者报告说，在看到他们受银屑病影响的皮肤时，他们预计其他人会将他们刻板印象为“传染性”。线性回归分析表明，与轻度银屑病相比，患者报告的重度银屑病与更大的负面刻板印象、社交回避和感知他人耻辱的预期相关（P值<0.05）。医生测量的体表面积和总体评估评分与任何结局均无显著相关性。PWP中预期和感知的耻辱感的患病率很高。我们的研究结果表明，客观措施的严重程度可能无法识别患者的风险与耻辱相关的困扰。可能需要其他方法，例如直接询问污名化经历。
Perceived stigma among patients with psoriasis (PWP) is associated with poorer quality of life. To determine the prevalence and predictors of stigmatizing attitudes that PWP expect and experience from others. We conducted a survey using validated outcome measures to assess the extent to which PWP anticipate and perceive stigma from others. Demographic and clinical characteristics were obtained from electronic medical records. Patients (n = 106) were 48.11% female, 70.75% white, and had a mean age ± SD of 47.90 ± 16.19 years old. Of all, 25.47% self-reported their psoriasis as severe. Mean physician global assessment score ± SD was 2.98 ± 1.81. Two-thirds (66.98%) of patients reported that, in response to seeing their psoriasis-affected skin, they anticipated others to stereotype them as “contagious.” Linear regression analyses demonstrated that patient-reported severe psoriasis, compared to mild psoriasis, was associated with greater anticipation of negative stereotypes, social avoidance, and perceived stigma from others (P values < .05). Physician-measured body surface area and global assessment scores were not significantly associated with any outcome. Prevalence of anticipated and perceived stigma among PWP is high. Our results suggest that objective measures of severity may not identify patients at risk of stigma-related distress. Additional methods, such as directly inquiring about stigmatizing experiences, may be needed.