The Life Satisfaction Matrix: an instrument and procedure for assessing the subjective quality of life of individuals with profound multiple disabilities.

The Life Satisfaction Matrix: an instrument and procedure for assessing the subjective quality of life of individuals with profound multiple disabilities.
复制标题

生活满意度矩阵:用于评估患有严重多重残疾的个人的主观生活质量的工具和程序。

DOI:
10.1111/j.1365-2788.2005.00748.x
复制
发表时间:
2005
期刊:
Journal of intellectual disability research : JIDR
影响因子:
--
通讯作者:
Gordon Lyons
Gordon Lyons
中科院分区:
--
文献类型:
--
作者:
Gordon Lyons

文献摘要

被引文献

相似文献

背景 评估和测量深度多重残疾(PMD)患者的主观生活质量(QOL)仍然是该领域理论家和实践者面临的最困难的挑战之一。使用熟悉的其他人的代理报告的常见方法已被证明对PMD患者的可靠性和有效性有问题。 方法 作者对这些人主观生活质量的本质的理解的持续研究导致了生活满意度矩阵(LSM)的开发和评估,这是一种评估这些人的主观生活质量的工具和程序。 结果 本文描述了为支持LSM的假设和表面有效性提供经验证据的定性研究。 结论 本文描述的研究结果表明,在评估和测量PMD患者的主观生活质量方面,有一定的潜力来应对和克服上述挑战。
BACKGROUND Assessing and measuring subjective quality of life (QOL) for individuals with profound multiple disabilities (PMD) remain amongst the most difficult challenges for theorists and practitioners in the field. The usual approaches using proxy reporting by familiar others have been demonstrated to be of questionable reliability and validity for persons with PMD. METHOD The author's continuing research into understanding the nature of subjective QOL of these individuals has led to the development and evaluating the Life Satisfaction Matrix (LSM), an instrument and procedure for assessing the subjective QOL of these individuals. RESULTS Qualitative research that provides empirical evidence to support the assumptions underpinning, and face validity of, the LSM is described in this article. CONCLUSION Results of the study described herein demonstrate some potential to meet and overcome the above-mentioned challenges to assess and measure the subjective QOL of individuals with PMD.