Inside, outside and in-between: The process and impact of co-producing knowledge about autism in a UK Somali community
Inside, outside and in-between: The process and impact of co-producing knowledge about autism in a UK Somali community
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DOI：
10.1111/hex.12939
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发表时间：
2019-07-18
影响因子：
3.2
通讯作者：
Redwood, Sabi
中科院分区：
文献类型：
--
作者：
Aabe, Nura O.;Fox, Fiona;Redwood, Sabi
背景 联合生产的基础是研究伙伴关系中平等的权力分享和责任。然而，从公共贡献者和研究人员的角度探讨共同研究人员如何实现这种平等的主观体验的报道相对较少。目的 本文旨在通过将个人反思与原则相结合来评估共同生产知识所产生的影响，从而提供对共同生产过程的独特见解。它基于由一位“非专业人士”代表社区组织发起的参与性研究，旨在为受自闭症影响的索马里家庭寻求支持。本文探讨了从社区戏剧和定性研究开始并导致广泛传播和影响的不断发展的伙伴关系，所有这些都是由联合研究人员和社区组织共同拥有和协商的。讨论 首先，本文反思了这一过程，借鉴了健康研究中合作生产的原则，并将其与共同研究人员对他们作为内部人和外部人、进出彼此世界的经历的个人反思相结合。互惠、灵活性和持续反思的价值得到了体现。本文的后半部分使用理论框架探讨了这种共同产生的知识的影响，以评估具体影响及其更广泛的变革潜力。它展示了（1）所有合作伙伴在整个研究过程中尽可能公平地参与的机会如何影响社会变革；（2）共同开展的研究可以成为动态和复杂的催化剂，实现多层次的影响。
Background Co-production is predicated on equal power-sharing and responsibility in research partnerships. However, relatively few accounts exist that explore the subjective experience of how co-researchers achieve such equality, from the perspectives of public contributors and researchers. Aim This paper aims to provide a unique insight into the process of co-production, by weaving personal reflections with principles to evaluate the impact arising from co-produced knowledge. It is based upon participatory research that was initiated by a 'lay' person, on behalf of a community organization, seeking support for Somali families who are affected by autism. The paper explores the evolving partnerships that began with community theatre and qualitative research and leading to extensive dissemination and impact, all of which has been jointly owned and negotiated by the co-researchers and community organizations. Discussion Initially, this paper reflects on the process, drawing on principles defined for co-production in health research and combining it with the co-researcher's personal reflections of their experiences as insiders and outsiders, stepping in and out of each other's worlds. The value of reciprocity, flexibility and continuous reflection is illustrated. The latter part of the paper explores the impact of this co-produced knowledge using a theoretical framework, to assess the specific impacts and its broader transformative potential. It demonstrates how (1) opportunities for all partners to be equitably involved to the maximum degree possible throughout the research process can affect social change and (2) co-produced research can become a catalyst that is dynamic and complex, achieving multi-layered impact.