Public standards and patients' control: how to keep electronic medical records accessible but private

Public standards and patients' control: how to keep electronic medical records accessible but private
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DOI:
10.1136/bmj.322.7281.283
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发表时间:
2001-02-03
影响因子:
105.7
通讯作者:
Kohane, IS
Kohane, IS
中科院分区:
医学1区
文献类型:
--
作者:
Mandl, KD;Szolovits, P;Kohane, IS

文献摘要

被引文献

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患者的医疗记录通常分散在多个治疗地点,这对临床护理、研究和公共卫生工作构成了障碍。1电子病历和互联网提供了一种技术基础设施,可以在此基础上建立可跨保健地点整合的纵向病历。对这些记录的结构和所有权的选择将对患者信息的可访问性和隐私产生深远影响。随着专有在线医疗记录系统的开发和部署,令人震惊的趋势已经显而易见。这项有望统一患者目前不同病历片段的技术实际上可能会威胁到信息的可访问性,并危及患者的隐私。2在本文中,我们提出了指导在线病历系统发展的两个原则和六个理想特征。我们描述了如何开发这样的系统并在临床上使用。
A patient’s medical records are generally fragmented across multiple treatment sites, posing an obstacle to clinical care, research, and public health efforts. 1 Electronic medical records and the internet provide a technical infrastructure on which to build longitudinal medical records that can be integrated across sites of care. Choices about the structure and ownership of these records will have profound impact on the accessibility and privacy of patient information. Already, alarming trends are apparent as proprietary online medical record systems are developed and deployed. The technology promising to unify the currently disparate pieces of a patient’s medical record may actually threaten the accessibility of the information and compromise patients’ privacy. 2 In this article we propose two doctrines and six desirable characteristics to guide the development of online medical record systems. We describe how such systems could be developed and used clinically.