Traumatic brain injury in Uganda: exploring the use of a hospital based registry for measuring burden and outcomes.
Traumatic brain injury in Uganda: exploring the use of a hospital based registry for measuring burden and outcomes.
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DOI：
10.1186/s13104-018-3419-1
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发表时间：
2018-05-15
影响因子：
1.8
通讯作者：
Hyder, Adnan A
中科院分区：
文献类型：
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作者：
Mehmood, Amber;Zia, Nukhba;Hyder, Adnan A
目的：缺乏有关创伤性脑损伤(TBI)的数据，阻碍了人们对TBI负担的真实程度的认识。本文描述了一种在低收入国家以医院为基础的系统数据收集的科学方法。该登记表基于伤害监测系统的评估框架，该框架包括四个步骤：(1)确定评估监测系统的特征，(2)基于采用的具体的、可测量的、可分配的、现实的和与时间相关的标准对确定的变量进行审查，(3)由专家小组对建议的变量和系统特征进行评估，以及(4)评级系统的开发和应用。结果：基于医院的电子创伤登记系统通过协作的方法设计，以获取从受伤时到死亡或出院的每个脑损伤病例的全面而具体的信息。它包括患者的人口统计、院前和医院评估和护理、脑损伤原因、损伤严重程度和患者预后。乌干达的登记册将为在其他类似情况下复制这一进程提供机会，并有助于在这些情况下更好地了解全面发展倡议，并将其纳入减少低收入和中等收入国家因全面发展而造成的死亡和残疾的全球议程。
OBJECTIVE: Lack of data on traumatic brain injuries (TBI) hinders the appreciation of the true magnitude of the TBI burden. This paper describes a scientific approach for hospital based systematic data collection in a low-income country. The registry is based on the evaluation framework for injury surveillance systems which comprises a four-step approach: (1) identifying characteristics that assess a surveillance system, (2) review of the identified variables based on adopted specific, measurable, assignable, realistic, and time-related criteria, (3) assessment of the proposed variables and system characteristics by an expert panel, and (4) development and application of a rating system.RESULTS: The electronic hospital-based TBI registry is designed through a collaborative approach to capture comprehensive, yet context specific, information on each TBI case, from the time of injury until death or discharge from the hospital. It includes patients' demographics, pre-hospital and hospital assessment and care, TBI causes, injury severity, and patient outcomes. The registry in Uganda will open the opportunity to replicate the process in other similar context and contribute to a better understanding of TBI in these settings, and feed into the global agenda of reducing deaths and disabilities from TBI in low-and middle-income countries.