"I'm Not Like My Friends": Understanding How Children with a Chronic Illness Use Technology to Maintain Normalcy
"I'm Not Like My Friends": Understanding How Children with a Chronic Illness Use Technology to Maintain Normalcy
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DOI：
10.1145/2675133.2675201
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发表时间：
2015-02
期刊：
影响因子：
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通讯作者：
Leslie S. Liu;K. Quinn;W. Pratt
中科院分区：
文献类型：
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作者：
Leslie S. Liu;K. Quinn;W. Pratt
被诊断患有慢性病(如癌症)的儿童与健康儿童相比，经历了一个截然不同的童年。他们可能很难接受自己不再被视为“正常”的事实。我们调查了10名患有慢性病的儿童，并采访了15名医疗保健专业人员和7名慢性病儿童的父母，以了解他们的沟通做法以及这些患者如何与同龄人保持联系的挑战。我们发现，儿科患者由于病情性质和经常住院，经常使用各种通讯技术与朋友保持联系，试图保持生活的正常。一些患者还不得不创造一个平衡诊断前后生活的“新常态”。基于这些结果，我们建议利用技术来帮助患者与他人建立联系并保持常态感，或者鼓励他们接受他们的“新常态”。
Children diagnosed with a chronic illness, such as cancer, experience a vastly different childhood than their healthy counterparts. They may struggle with accepting that they are no longer seen as "normal". We surveyed 10 children who have a chronic illness and interviewed 15 healthcare professionals and 7 parents of chronically ill children to understand their communication practices and challenges of how these patients stay connected with their peers. We found that due to the nature of their illness and constant hospitalization, pediatric patients often use various communication technologies to stay in touch with friends and try to maintain normalcy in their lives. Some patients also had to create a "new normal" that balanced life before and after being diagnosed. Based on these results, we suggest opportunities for technology to help patients connect to others and retain a sense of normalcy or to encourage them to embrace their "new normal".