Adolescent and Caregiver Experiences With Epilepsy
Adolescent and Caregiver Experiences With Epilepsy
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DOI：
10.1177/0883073809332396
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发表时间：
2009-05-01
影响因子：
1.9
通讯作者：
Zingaro, Wendy M.
中科院分区：
文献类型：
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作者：
Asato, Miya R.;Manjunath, Ranjani;Zingaro, Wendy M.
青春期癫痫会阻碍心理社会独立性和典型的生物成熟过程的发展。我们同时研究了青少年癫痫患者和他们的照顾者的经验和看法。具体而言，我们重点关注癫痫发作的频率和类型、共病情况、治疗依从性、生产力、癫痫发作的临床和生活质量后果、估计癫痫发作应急计划的使用和内容以及医患关系。在153名青少年癫痫患者及其各自的照顾者中进行了两项横断面在线调查。总共有35%的青少年表示，他们在前一个月没有坚持服用抗癫痫药物。青少年在生活质量方面的得分明显低于同龄人。青少年和照料者在几乎所有领域的报告都类似。以癫痫为中心的癫痫管理计划可能有助于减轻担忧，并帮助青少年在过渡到成年时独立管理癫痫。
Epilepsy during adolescence can impede the development of psychosocial independence and typical biological maturational processes. We examined in parallel the experiences and perceptions of adolescent patients with epilepsy and their caregivers. Specifically, We focused on frequency and type of, seizures, comorbid conditions, adherence to therapies, productivity, clinical and quality of life consequences of seizures, estimated use and content of seizure emergency plans, and the patient-physician relationship. Two cross-sectional online surveys were conducted among 153 adolescent patients with epilepsy and their respective caregivers. A total of 35% of adolescents indicated that they had been nonadherent to antiepileptic medications in the prior month. Adolescents scored significantly lower compared with their peers on quality-of-life measures. Adolescents and caregivers reported similarly on nearly all domains. An adolescent-centered epilepsy management program may help alleviate concerns and also help the adolescent independently manage their epilepsy as they transition into adulthood.