Chronic pruritus - more than a symptom: a qualitative investigation into patients' subjective illness perceptions
Chronic pruritus - more than a symptom: a qualitative investigation into patients' subjective illness perceptions
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DOI：
10.1111/j.1365-2648.2012.06009.x
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发表时间：
2013-02-01
影响因子：
3.8
通讯作者：
Matterne, Uwe
中科院分区：
文献类型：
--
作者：
Bathe, Anja;Weisshaar, Elke;Matterne, Uwe
洗澡，魏沙尔河& Matterne U.（2012）慢性瘙痒症不仅仅是一种症状：对患者主观疾病感知的定性调查。Journal of Advanced Nursing69（2），316326. doi：10.1111/j.1365-2648.2012.06009.x摘要目的。这篇文章是一项探讨慢性瘙痒症（>6周）患者主观疾病感知的研究报告。背景瘙痒是皮肤病以及其他疾病的常见症状。这种普遍的症状对生活质量有重大影响。关于慢性瘙痒患者如何构建症状，他们归因于什么原因，他们忍受的后果，他们如何控制症状和体验医疗保健系统，我们知之甚少。设计建构主义探究视角下的质性设计。方法. 2008年9月至2009年2月，对16例患者进行了半结构化访谈，并采用定性内容分析进行分析。结果许多患者发现很难向其他人充分描述症状，有时导致症状的奇怪描述，引起外行人和卫生专业人员的愤怒。这种恼怒常常使患者感到被误解。病人经常感到他们的负担没有得到卫生专业人员的认真对待。这一点和其他各种原因导致难以接受给定的诊断。这可能会使患者对目前的医疗保健和系统不满意。他们的反应是频繁更换医生，并考虑补充和替代治疗方法。结论帮助慢性瘙痒症患者努力充分描述症状沿着无条件的关注和同情是关键因素，可以帮助加强医患关系和随后接受给定的诊断。更加重视这些患者的观点也可能提高医疗保健服务的质量。
bathe a., weisshaar e. & matterne u. (2012) Chronic pruritus more than a symptom: a qualitative investigation into patients subjective illness perceptions. Journal of Advanced Nursing69(2), 316326. doi: 10.1111/j.1365-2648.2012.06009.x Abstract Aim. This article is a report of a study exploring the subjective illness perceptions of patients with chronic pruritus (>6 weeks). Background. Pruritus is a common symptom of dermatological as well as other conditions. This pervasive symptom has a substantial impact on quality of life. Little is known about how patients with chronic pruritus construct the symptom, what causes they ascribe, consequences they endure, how they control the symptom and experience the healthcare system. Design. A qualitative design taking a constructivist inquiry perspective. Methods. Semi-structured interviews with 16 patients were conducted between September 2008February 2009 and analysed by qualitative content analysis. Results. Many patients find it very difficult to adequately describe the symptom to others resulting sometimes in bizarre accounts of the symptom that provoke irritation in lay people and health professionals. This irritation frequently leaves the sufferer feeling misunderstood. Patients often feel their burden is not taken seriously by health professionals. This and various other reasons contribute to difficulties in accepting a given diagnosis. This can leave patients unsatisfied with their current health care and the system. They respond with frequent doctor changes and consideration of complementary and alternative therapeutic methods. Conclusion. Assisting patients with chronic pruritus in their efforts to adequately describe the symptom along with unconditional regard and empathy are key factors that can help enhance the providerpatient relationship and subsequent acceptance of a given diagnosis. A stronger emphasis on the perspectives of these patients may also improve the quality of healthcare provision.