The citizen scientist: Community-academic partnerships through Translational Advisory Boards.
The citizen scientist: Community-academic partnerships through Translational Advisory Boards.
复制标题
公民科学家：通过转化咨询委员会建立社区学术伙伴关系。
DOI：
10.1016/j.pec.2016.07.013
复制
发表时间：
2016
影响因子：
3.5
通讯作者：
Puga,Frank
中科院分区：
文献类型：
--
作者：
Patel,DarpanI;Winkler,Paula;Botello,Jorge;Villarreal,Jocelin;Puga,Frank
目的描述在研究过程中让患者伙伴作为“公民科学家”参与的有效性，以促进代表性不足的人群中以患者为中心的结果研究。方法南德克萨斯州的转化咨询委员会与大学研究人员有效合作，开发以社区为基础的以患者为中心的研究。在这里，我们描述了吸引患者参与的创新研究方法，并提供了加强患者和研究人员之间的伙伴关系以促进患者参与的实用方法。结果 TAB 确定的三个健康问题是糖尿病、肥胖和青少年怀孕。其他社区启发的研究主题的例子包括空气和水质、耐甲氧西林金黄色葡萄球菌、亲密伴侣暴力、慢性疼痛以及人乳头瘤病毒和丙型肝炎疫苗接种。结论他们所经历的差异。为了充分解决我们国家在提供公平医疗保健方面的缺陷，我们必须将不同的合作伙伴充分纳入研究过程。通过让社区拥护者参与进来，学术健康中心可以充分整合对其所服务的服务区域感兴趣的主题的有意义的干预措施。实践意义这些经验教训可用于在全国范围内发展地方和区域合作，以促进患者利益相关者积极参与 PCOR，从而减少医疗保健差距并改善我们的医疗保健系统。
ObjectiveTo describe the effectiveness of engaging patient partners as “citizen scientists” in the research process to boost patient centered outcomes research in underrepresented populations.MethodsTranslational Advisory Boards in South Texas have effectively collaborated with University researchers to develop community-based patient centered research. Here we describe innovative approaches in research to engage patients and offer practical methods to enhance partnerships between patients and researchers to facilitate patient engagement.ResultsThree health issues identified by the TABs were diabetes, obesity and teen pregnancy Examples of other community inspired research topics include air and water quality, methicillin-resistant staphylococcus aureus, intimate partner violence, chronic pain, and human papilloma virus and hepatitis C vaccinations.ConclusionPatient engagement of underrepresented populations is inverse to the vast disparities they experience. In order to adequately address our nation’s deficits in providing equitable healthcare, we must fully integrate disparate partners into the research process. By engaging community champions, academic health centers can fully integrate meaningful interventions on topics of interest to the catchment area in which they serve.Practice implicationsThese lessons can be used in developing local and regional collaborations across the country to boost active participation of patient stakeholder in PCOR to reduce healthcare disparities and improve our healthcare systems.