People with Dementia in Sub-Saharan Africa: From Support to Abuse by Caregivers: Results of EPIDEMCA-FU Program in Congo
People with Dementia in Sub-Saharan Africa: From Support to Abuse by Caregivers: Results of EPIDEMCA-FU Program in Congo
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DOI：
10.1159/000489846
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发表时间：
2019-01-01
影响因子：
2.3
通讯作者：
Preux, Pierre-Marie
中科院分区：
文献类型：
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作者：
Kehoua, Gilles;Dubreuil, Catherine-Marie;Preux, Pierre-Marie
背景/目标：痴呆症是撒哈拉以南非洲 (SSA) 地区新出现的公共卫生问题。在 SSA 中，痴呆症患者 (PWD) 所遭受的耻辱可能与贬低性的社会表征密切相关，从而干扰了与非正式护理人员的社会关系。该研究的目的是分析残疾人的社会表征在与非正式护理人员的社交互动中的后果。方法：在刚果共和国对 93 名受访者进行了一项定性研究。非定向访谈以当地语言进行，并辅以参与观察。收集到的数据被逐字转录、合成，然后编码以允许提取和组织文本片段。结果：非正式照顾者、儿媳妇被认为是施虐者，孙女被认为是仁慈的。由于社会对疾病的贬义描述，融合教会的领袖和传统治疗师是残疾人士的第一个治疗路线。其中，一些残疾人因巫术指控而受到习惯管辖。痴呆症被非正式的护理人员视为一种神秘的疾病，融合教会的领袖、传统治疗师、护士或全科医生并没有对痴呆症进行治疗。结论：社会表征产生的耻辱可以改变患者和非正式护理人员的行为，导致寻求适当帮助的时间延迟。 (C) 2019 作者由巴塞尔 S. Karger AG 出版
Background/Aims: Dementia is an emerging public health problem in sub-Saharan Africa (SSA). In SSA, the stigma suffered by people with dementia (PWD) can be strongly linked to pejorative social representations, interfering in social relationships with informal caregivers. The objective of the study was to analyze the consequences of social representations of PWD in social interactions with informal caregivers. Methods: A qualitative study was conducted in Republic of Congo among 93 interviewees. Nondirectional interviews were conducted in local languages and complemented by participating observations. The collected data were transcribed literally, synthesized, and then coded to allow extraction and organization of text segments. Results: Informal caregivers, daughters-in-laws, were considered as abusers and granddaughters as benevolent. The leaders of syncretic churches and traditional healers were the first therapeutic itineraries of PWD, due to pejorative social representations of disease. Of these, some PWD have appeared at front of a customary jurisdiction for accusations of witch-craft. Dementia, perceived as a mysterious disease by informal caregivers, wasn't medicalized by leaders of syncretic churches, traditional healers, nurses, or general practitioners. Conclusion: Stigma, generated by social representations, can change the patient's behavior and the one of informal caregivers, leading to time delay in the search for appropriate help. (C) 2019 The Author(s) Published by S. Karger AG, Basel