The IRIS® Registry. Purpose and perspectives. German Version
The IRIS® Registry. Purpose and perspectives. German Version
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DOI：
10.1007/s00347-016-0300-2
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发表时间：
2016-06-01
期刊：
影响因子：
--
通讯作者：
Rich, W. L.
中科院分区：
文献类型：
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作者：
Parke, D. W., II;Lum, F.;Rich, W. L.
美国眼科学会IRIS（R）注册中心（Intelligent Research in Sight）于2年前启动，现已成为最大的国家临床专业数据注册中心，拥有近5000万患者访问量和超过1400万独立患者。注册的目的是支持和促进眼科护理的持续改进。“大数据”所涵盖的观点是眼科和眼科护理面临的关键问题，包括有关疾病发病率和患病率的公共卫生和公共政策，眼科护理服务的利用，疾病的自然史，疾病监测，比较有效性，安全性和不良事件监测，遵守“最佳实践”和临床指南，IRIS登记系统和其他类似登记系统提供的宝贵的现实世界和当今见解将加速科学学习和医疗服务的改进，特别是在成本受限的环境中。
The American Academy of Ophthalmology IRIS (R) Registry (Intelligent Research in Sight) launched about 2 years ago and has already become the largest national clinical specialty data registry with nearly 50 million patient visits and over 14 million unique patients. The purpose of the registry is to support and promote continued improvement in the delivery of eye care. The perspectives that "big data" encompass are the key issues facing ophthalmology and eye care, including public health and public policy concerning disease incidence and prevalence, utilization of eye care services, natural history of disease, disease surveillance, comparative effectiveness, safety and adverse event monitoring, compliance with "best practices" and clinical guidelines, etc. The valuable real-world and current-day insights provided by the IRIS Registry and other registries like it will accelerate scientific learning and improvements in care delivery, particularly in a cost-constrained environment.