Cancer Patient Experience in the Teenage Young Adult Population-Key Issues and Trends Over Time: An Analysis of the United Kingdom National Cancer Patient Experience Surveys 2010-2014
Cancer Patient Experience in the Teenage Young Adult Population-Key Issues and Trends Over Time: An Analysis of the United Kingdom National Cancer Patient Experience Surveys 2010-2014
复制标题
DOI：
10.1089/jayao.2016.0058
复制
发表时间：
2017-09-01
影响因子：
2
通讯作者：
Hough, Rachael E.
中科院分区：
文献类型：
--
作者：
Furness, Caroline L.;Smith, Lesley;Hough, Rachael E.
改善患有癌症的青少年和年轻人(TYA)的预后是英格兰国家癌症战略的一个关键因素。认识到这一群体的独特需求，通过在英国各地的主要治疗中心(PTC)提供专门的临床单元，制定了关于这种护理的具体模式和提供这种护理的建议。这项研究的目的是了解这一患者群体目前的癌症患者体验。我们的目标是利用来自全国癌症患者体验调查的患者报告数据来确定治疗体验是否受到治疗地点的影响，以及它是否随着时间的推移而发生变化。这项研究强调，TYA组的诊断路径漫长仍然是一个问题，并确定了TYA服务的质量改进措施应该重点关注的领域，包括患者在治疗决策中的沟通和参与。还强调了TYA小组的积极经验，如参与研究。TYA PTC内的治疗与患者在许多关键领域的积极看法相关，这突显了未来研究的必要性，以充分阐明英国目前提供的全方位TYA服务对患者体验和结果的影响。
Improving outcomes for teenagers and young adults (TYA) with cancer is a key element of the national cancer strategy in England. Recognition of the unique needs of this group has led to the development of recommendations for specific models of care and delivery of this care through the provision of dedicated clinical units in principal treatment centers (PTCs) across the United Kingdom. The aim of this study was to understand the current cancer patient experience for this patient group. We aimed to determine whether treatment experience is influenced by place of treatment and whether it has changed over time using patient-reported data from national cancer patient experience surveys. This study highlights that a prolonged pathway to diagnosis remains an issue for the TYA group and identifies areas on which quality improvement measures for TYA services should focus, including communication and involvement of the patient in treatment decisions. Positive experiences for the TYA group such as involvement in research were also highlighted. Treatment within a TYA PTC was associated with positive patient perception in a number of key areas highlighting the need for future studies to fully elucidate the impact of the full range of TYA services now available in the United Kingdom on both patient experience and outcome.