Cohort profile: The QSkin Sun and Health Study

Cohort profile: The QSkin Sun and Health Study
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DOI:
10.1093/ije/dys107
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发表时间:
2012-08-01
影响因子:
7.7
通讯作者:
Whiteman, David C.
Whiteman, David C.
中科院分区:
医学1区
文献类型:
--
作者:
Olsen, Catherine M.;Green, Adele C.;Whiteman, David C.

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QSkin阳光与健康研究包括2011年从澳大利亚昆士兰州人口中随机抽样的43794名年龄在40-69岁之间的男性和女性。该队列的建立是为了研究世界上报告的皮肤癌和黑色素瘤发病率最高的人群中皮肤癌和黑色素瘤的发展。在基线时,除了人口统计学项目和一般病史外,通过自填问卷收集有关标准色素沉着特征(包括头发和眼睛颜色、雀斑倾向、晒黑能力和晒伤倾向)、既往和近期日光暴露和晒伤史、防晒行为、晒黑床使用情况和皮肤癌史的信息。参与者同意将数据与全民健康保险计划连接,并与癌症登记和病理学数据库连接,从而确保完全确定未来所有皮肤癌和黑色素瘤的发生以及医疗和其他癌症事件。与这些登记册的联系将按预定的时间间隔进行。访问QSkin数据的批准可以在向研究者申请并提交正式的研究计划时获得,该计划已获得申请人所在机构的人类研究伦理委员会的批准。
The QSkin Sun and Health Study comprises a cohort of 43 794 men and women aged 40-69 years randomly sampled from the population of Queensland, Australia in 2011. The cohort was established to study the development of skin cancer and melanoma in the population with the highest reported incidence of these diseases in the world. At baseline, besides demographic items and general medical history, information about standard pigmentary characteristics (including hair and eye colour, freckling tendency, tanning ability and propensity to sunburn), past and recent history of sun exposure and sunburns, sun protection behaviours, use of tanning beds and history of skin cancer was collected by self-completed questionnaire. Participants have given their consent for data linkage to the universal national health insurance scheme and for linkage to cancer registries and pathology databases, thus ensuring complete ascertainment of all future skin cancer and melanoma occurrences and medical treatments and other cancer events. Linkage to these registers will occur at predetermined intervals. Approval to access QSkin data can be obtained on application to the study investigators and submission of a formal research plan that has previous approval from the human research ethics committee of the applicant's institution.