Mapping the role of official bioethics advice in the governance of biotechnologies in the EU: The European Group on Ethics' Opinion on commercial cord blood banking
Mapping the role of official bioethics advice in the governance of biotechnologies in the EU: The European Group on Ethics' Opinion on commercial cord blood banking
复制标题
绘制官方生物伦理建议在欧盟生物技术治理中的作用：欧洲伦理小组关于商业脐带血库的意见
DOI：
10.1093/scipol/scs003
复制
发表时间：
2012
影响因子：
2.7
通讯作者：
Mohr A
中科院分区：
文献类型：
--
作者：
Mohr A
20世纪90年代初，欧盟提出的生物经济议程引起了公民的伦理担忧。为了应对经济和伦理需要之间的政治僵局，以及缺乏民主合法性，欧盟成立了一个专家生物伦理咨询机构，称为欧洲科学和新技术伦理小组（EGE）。欧盟生物伦理处于法律、生物伦理和经济政策的边界，在欧盟生物技术治理中扮演着模糊的角色。为了阐明其作用和影响的性质，本文认为，作为一个更广泛的网络治理跨越欧盟和成员国机构的一个组成部分的EGE。作为一个案例研究，围绕商业脐带血银行的新出现的争议，我们探讨是否EGE和它的伦理意见，在这个问题上，欧盟的民主合法性作出了贡献。
In the early 1990s, the EU's proposed bioeconomic agenda provoked ethical concerns among its citizenry. In response to the political impasse between economic and ethical imperatives, as well as the perceived lack of democratic legitimacy, the EU established an expert bioethics advisory body, known as the European Group on Ethics in Science and New Technologies (EGE). Situated at the boundary between law, bioethics and economic policy, the EGE plays an ambiguous role in the governance of biotechnologies in the EU. To elucidate the nature of its role and influence, this paper considers the EGE as an integral element of a broader web of governance spanning EU and Member State institutions. Using as a case study the emerging controversy surrounding commercial cord blood banking, we explore whether the EGE and its ethical opinions on this matter have contributed to the democratic legitimacy of the EU.