From HIV diagnosis to initiation of treatment: Social transformation among people starting antiretroviral therapy in Peru.

From HIV diagnosis to initiation of treatment: Social transformation among people starting antiretroviral therapy in Peru.
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DOI:
10.1177/1473325015597996
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发表时间:
2017-01-01
期刊:
Qualitative social work : QSW : research and practice
影响因子:
--
通讯作者:
Shin S
Shin S
中科院分区:
其他
文献类型:
--
作者:
Waters C;Wong M;Nelson AK;SantaCruz J;Beeson A;Pfeiffer J;Muñoz M;Castro A;Shin S

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对于秘鲁利马贫困地区的艾滋病患者来说,社会支持是一项关键但又难以获得的资源。尽管对卫生服务的需求更大,并得到其他方面的鼓励,但经济限制、污名化以及在支离破碎的卫生系统谈判中遇到的困难,都是获得支持的障碍。在这项研究中,33名艾滋病毒感染者和15名治疗支持者在开始抗逆转录病毒治疗时接受了采访,以了解在这一关键时期社会支持的变化,以及这些变化如何影响他们的福祉。每个人的社交网络都发生了戏剧性的变化,有些人在被他们认识的人披露后被拒绝,许多人成功地将自己的社交圈缩小到几个值得信赖的人。治疗支持者往往是第一个向他们透露自己艾滋病毒状况的人,而且大多数人支持艾滋病毒感染者,尽管有时是出于义务。艾滋病毒感染者成为一个重要的新的力量来源。最终,成功重组社交网络的艾滋病毒感染者从他们生活中的新旧关系中获得了个人力量和自我价值。
Social support is a key, yet elusive resource for HIV patients living in poverty in Lima, Peru. Despite a greater need for health services and encouragement from others, economic restraints, stigma, and trouble negotiating a fractured health system act as hurdles to accessing support. In this study, 33 people with HIV and 15 of their treatment supporters were interviewed upon initiation of antiretroviral therapy in order to understand changes in social support during this critical time, and how these changes affected their well-being. Everyone’s social network underwent dramatic transformation, while some were rejected upon disclosure by people they knew, many successfully trimmed their social circles to a few trusted parties. Treatment supporters were most frequently the first to whom they disclosed their HIV status, and most backed the person with HIV, although sometimes out of obligation. HIV peers became a vital new source of strength. Ultimately, people with HIV who successfully reorganized their social network drew personal strength and self-worth from new and old relationships in their lives.
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