Positive aspects and challenges associated with caring for a dying relative at home.
Positive aspects and challenges associated with caring for a dying relative at home.
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DOI：
10.12968/ijpn.2004.10.2.12454
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发表时间：
2004-02
影响因子：
1
通讯作者：
P. Hudson
中科院分区：
文献类型：
--
作者：
P. Hudson
研究一直表明，尽管为护理人员提供全面的专业支持是姑息治疗的核心目标，但家庭护理人员仍有各种各样未得到满足的需求。这项对一个更大规模的随机对照试验的子研究，从47名近期开始接受家庭姑息治疗的晚期癌症患者的主要家庭护理人员那里寻求反馈。在他们家中进行的半结构化访谈中，家庭护理人员被要求对与其角色相关的关键挑战以及他们是否能够确定这些挑战发表评论。这些挑战与他们自身的健康不佳、家庭状况、管理患者症状的技能不足、自己的时间有限以及来自卫生专业人员的支持不足有关。尽管存在这些挑战，60%的家庭护理人员能够很容易地确定该角色的积极方面。先前的研究往往侧重于护理的负面影响。该角色的积极方面在多大程度上缓冲了消极方面，值得进一步探究，护理人员角色对那些无法认识到积极因素的人的长期影响也值得进一步探究。
Research has consistently shown that family caregivers have a variety of unmet needs, despite comprehensive professional support for caregivers being a central aim of palliative care. This sub-study of a larger randomized controlled trial sought feedback from 47 primary family caregivers of advanced cancer patients who had recently commenced home palliative care. During semi-structured interviews in their homes, family caregivers were asked to comment on the key challenges associated with their role and whether they could identify challenges. These were associated with their own ill health, family circumstances, insufficient skills to manage patient symptoms, limited time for themselves and inadequate support from health professionals. Despite these challenges, 60% of family caregivers were readily able to identify positive aspects of the role. Previous research has tended to focus on the negative impact of caregiving. The extent to which the positive aspects buffer the negative aspects of the role warrants further exploration, as does the long-term impact of the caregiver role on those who are unable to recognize positive elements.