Reconstructing reality: family strategies for managing childhood cancer.
Reconstructing reality: family strategies for managing childhood cancer.
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DOI：
10.1016/s0882-5963(97)80045-0
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发表时间：
1997-10-01
期刊：
影响因子：
--
通讯作者：
Clarke-Steffen, L
中科院分区：
文献类型：
--
作者：
Clarke-Steffen, L
目的是描述家庭在应对儿童癌症时使用的策略，并将这些策略与两种不同的概念框架联系起来。一项纵向的、前瞻性的、基于理论的研究对7个家庭的32名成员进行了抽样调查，这些家庭的孩子最近被诊断出患有癌症。所有5岁及以上的家庭成员都参加了三次半结构化的家庭访谈。采用恒定比较分析法。家庭参与的核心过程是重建现实，使用管理信息流的策略，重组角色，评估和转移优先事项，改变未来方向，赋予疾病意义，管理治疗方案。这些策略支持家庭管理风格框架，以查看儿童癌症的家庭管理。
The purpose was to describe strategies used by the family in response to childhood cancer and to relate those strategies to two different conceptual frameworks. A longitudinal, prospective, grounded theory study was conducted with a sample of 32 members of seven families who had a child recently diagnosed with cancer. All family members 5 years and older participated in three semistructured home interviews. Constant comparative analysis was used. The core process in which families engaged was reconstructing reality, using strategies of managing the flow of information, reorganizing roles, evaluating and shifting priorities, changing the future orientation, assigning meaning to the illness, and managing the therapeutic regimen. These strategies support a Family Management Style framework for viewing family management of pediatric cancer.