Structuring Public Engagement for Effective Input in Policy Development on Human Tissue Biobanking
Structuring Public Engagement for Effective Input in Policy Development on Human Tissue Biobanking
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DOI：
10.1159/000279621
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发表时间：
2010-01-01
影响因子：
1.7
通讯作者：
Hawkins, A.
中科院分区：
文献类型：
--
作者：
O'Doherty, K. C.;Hawkins, A.
我们开始的前提是，人体组织生物库是与伦理含糊和监管的不确定性，公众参与至少是一个重要因素，在应对这些挑战。然后，人们面临着如何实现既有意义又有效的公众参与。特别是，如何实施生物库主题的公众参与，以便（a）它被广泛认为是合法的，（B）参与的结果与机构和监管环境相关并有用？在本文中，我们建立在以前的工作，解决了前一点，主要集中在后者。我们认为，一种方法来增加公众参与的结果被纳入政策的可能性是通过制定的问题，是由公众审议的部分基础上的实际政策问题的投入是寻求。在这种方法中，我们将讨论生物银行的社会和伦理影响从抽象的原则，他们的考虑在当地的生物银行的做法。这是说明使用一个实际的例子，涉及公众参与进行通知机构政策，生物库在加拿大不列颠哥伦比亚省。版权所有（C）2010 S. Karger AG，巴塞尔
We begin with the premise that human tissue biobanking is associated with ethical ambiguities and regulatory uncertainty, and that public engagement is at least one important element in addressing such challenges. One is then confronted with how to achieve public engagement that is both meaningful and effective. In particular, how can public engagement on the topic of biobanking be implemented so that (a) it is perceived broadly as legitimate and (b) the results of the engagement are relevant and useful to the institutional and regulatory context? In this paper we build on previous work that has addressed the former point and focus primarily on the latter. We argue that one way to increase the likelihood of results of public engagement being taken up in policy is through framing the issues that are deliberated by members of the public based in part on the practical policy questions for which input is sought. In this approach, we move discussion on the social and ethical implications of biobanking from abstract principles, to their consideration in the context of local biobanking practices. This is illustrated using a practical example involving a public engagement conducted to inform institutional policy for biobanking in British Columbia, Canada. Copyright (C) 2010 S. Karger AG, Basel