Medication, chronic illness and identity: The perspective of people with asthma
Medication, chronic illness and identity: The perspective of people with asthma
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DOI：
10.1016/s0277-9536(96)00333-4
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发表时间：
1997-07-01
影响因子：
5.4
通讯作者：
Jones, A
中科院分区：
文献类型：
--
作者：
Adams, S;Pill, R;Jones, A
处方药的依从性问题传统上由卫生专业人员的观点主导，尽管越来越多的社会学家使用定性方法，开始提出患者的观点。然而，尽管患有这种慢性疾病的人数众多，而且定期开的药物数量也很大，但有关哮喘的文章却很少。本文以S.威尔士（英国）研究对象为过去12个月内接受过预防性药物治疗的哮喘患者，采用归纳定性研究方法，探讨他们在日常生活中对药物治疗的态度。两个主要群体被确定：否认者和接受者。他们在接受哮喘患者身份的准备程度上存在根本性差异，这反过来又与他们对哮喘问题的性质和处方药物的意义有着非常不同的信念有关，他们在自我展示和披露策略以及药物使用模式（特别是预防性药物）方面也存在显著差异。第三组，实用主义者，也被确定为接受者类别的一个可能的亚组，他们在自我介绍中不那么开放，在他们对哮喘的信念上不那么一致，但并不完全拒绝这个标签。身份的工作，即受访者解释哮喘患者的社会身份，并设法调和它与其他社会身份的方式，被认为是最有用的方式来理解所观察到的变化的方式诊断为哮喘的人概念化和使用他们的药物。(C)1997 Elsevier Science Ltd.
The issue of compliance with prescribed medication has traditionally been dominated by the perspective of the health professional although increasingly sociologists, using qualitative methods, have begun to present the patients' point of view. However, little has been published on asthma, despite the numbers of people suffering from this chronic condition and the amount of medication regularly prescribed. This paper focuses on the perspective of a sample of S. Wales (U.K.) asthma patients who have all been prescribed prophylactic medication in the last 12 months and explores their attitudes to medication in the context of their everyday lives, using inductive qualitative research methods. Two main groups were identified: the deniers and the accepters. They differed fundamentally in their readiness to accept the identity of asthma sufferer which, in turn, was associated with very different beliefs about the nature of their problem and the meaning of the medication prescribed for it. There was also marked differences in their strategies of self-presentation and disclosure and their pattern of medication use, particularly for prophylactic medication. A third group, the pragmatists, were also identified as a possible sub-group of the accepter category who are less open within self-presentation and less consistent in their beliefs about asthma but do not reject the label entirely. Identity work, i.e. the way the respondents interpreted the social identity of asthma sufferers and managed to reconcile it with other social identities, is proposed as the most useful way of understanding the observed variation in the way people diagnosed as asthmatic conceptualise and use their medication. (C) 1997 Elsevier Science Ltd.