Psychosocial service use and unmet need among recently diagnosed adolescent and young adult cancer patients
Psychosocial service use and unmet need among recently diagnosed adolescent and young adult cancer patients
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DOI：
10.1002/cncr.27713
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发表时间：
2013-01-01
期刊：
影响因子：
6.2
通讯作者：
Cole, Steven
中科院分区：
文献类型：
--
作者：
Zebrack, Brad J.;Block, Rebecca;Cole, Steven
背景技术背景：患有癌症的青少年和年轻人（AYAs）表现出与儿童或老年人不同的生物医学风险和心理社会问题。在这项研究中，作者检查并比较了在儿科或成人肿瘤学环境中接受治疗的AYA报告使用心理社会支持服务和未满足需求的程度。方法：在最初的癌症诊断的4个月内，对215名年龄在14至39岁之间的AYA（99名来自儿科护理机构，116名来自成人护理机构; 75%的应答率）进行了评估，以报告使用信息资源，情感支持服务和实际支持服务的情况。在控制了种族、就业/学校状况、性别、关系状况、癌症严重程度、治疗和治疗相关副作用后，统计分析得出了服务使用和未满足需求的比值比和95%置信区间。研究结果：年龄在20至29岁之间的AYA患者报告使用专业心理健康服务的可能性明显低于年龄在30至39岁之间的青少年和老年患者，并且更有可能报告在癌症信息，不孕不育信息和饮食/营养信息方面未满足的需求。与在儿科设施中接受治疗的青少年相比，在成人设施中接受治疗的AYA更有可能报告未满足的年龄适当的互联网网站，专业心理健康服务，营地/务虚会计划，交通援助以及补充和替代健康服务的需求。结论：相当大比例的AYA没有得到他们的心理社会护理需求得到满足。加强心理社会支持人员和病人转介到社区社会服务机构和信誉良好的互联网资源，可以加强护理和提高生活质量的AYA。癌症2013。(c)2012年美国癌症协会
BACKGROUND: Adolescents and young adults (AYAs) with cancer demonstrate biomedical risks and psychosocial issues distinct from those of children or older adults. In this study, the authors examined and compared the extent to which AYAs treated in pediatric or adult oncology settings reported use of, and unmet need for, psychosocial support services. METHODS: Within 4 months of initial cancer diagnosis, 215 AYAs ages 14 to 39 years (99 from pediatric care settings and 116 from adult care settings; 75% response rate) were assessed for reporting use of information resources, emotional support services, and practical support services. Statistical analyses derived odds ratios and 95% confidence intervals for service use and unmet needs after controlling for race, employment/school status, sex, relationship status, severity of cancer, treatment, and treatment-related side effects. RESULTS: AYAs ages 20 to 29 years were significantly less likely than teens and older patients ages 30 to 39 years to report using professional mental health services and were significantly more likely to report an unmet need with regard to cancer information, infertility information, and diet/nutrition information. Compared with teens who were treated in pediatric facilities, AYAs who were treated in adult facilities were more likely to report an unmet need for age-appropriate Internet sites, professional mental health services, camp/retreats programs, transportation assistance, and complementary and alternative health services. CONCLUSIONS: Substantial proportions of AYAs are not getting their psychosocial care needs met. Bolstering psychosocial support staff and patient referral to community-based social service agencies and reputable Internet resources may enhance care and improve quality of life for AYAs. Cancer 2013. (c) 2012 American Cancer Society.