Ethical challenges in community-based research
Ethical challenges in community-based research
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DOI：
10.1097/00000441-200111000-00001
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发表时间：
2001-11-01
影响因子：
3.1
通讯作者：
Rotimi, C
中科院分区：
文献类型：
--
作者：
Marshall, PA;Rotimi, C
基于人口的研究中的研究人员面临着独特的伦理挑战，这是由于他们的研究的社区背景、他们的调查方法以及他们的研究结果对社会群体的影响。关于知情同意的要求、保护隐私和机密性以及调查人员和参与者之间的关系的问题变得更加复杂，其意义超出了个别研究主题。在这篇文章中，简要审查了与社区流行病学研究相关的伦理挑战。我们认为，在伦理上负责任的基于人群的研究必须认真考虑社区的需求和优先事项，研究人员应该与当地人口合作，以实现研究目标。概述了在以社区为基础的研究中促进尊重人口的战略。这些措施包括社区参与研究开发、实施和解释；向社区成员提供关于研究目标的充分信息；以及对研究结果的有系统的反馈。
Investigators in population-based studies confront unique ethical challenges due to the community context of their research, their methods of inquiry, and the implications of their findings for social groups. Issues surrounding requirements for informed consent, the protection of privacy and confidentiality, and relationships between investigators and participants take on greater complexity and have significance beyond the individual research subject. In this paper, ethical challenges associated with community-based epidemiological research are briefly examined. We argue that ethically responsible population-based studies must seriously consider community needs and priorities and that researchers should work collaboratively with,local populations to implement study goals. Strategies that promote respect for populations in community-based studies are outlined. These include community participation in research development, implementation and interpretation; adequate provision of information about study objectives to community members; and systematic feedback of study results.