Reported effects of non-traditional treatments and complementary and alternative medicine by retinitis pigmentosa patients
Reported effects of non-traditional treatments and complementary and alternative medicine by retinitis pigmentosa patients
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DOI：
10.1111/j.1444-0938.2007.00224.x
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发表时间：
2008-03-01
影响因子：
1.9
通讯作者：
Dagnelie, Gislin
中科院分区：
文献类型：
--
作者：
Kiser, Ava K.;Dagnelie, Gislin
背景：补充和替代医学(CAM)相关干预措施的益处已被证明适用于压力、焦虑和残疾普遍存在的慢性系统性疾病患者。患有视网膜色素变性(RP)的受试者通常表示他们视力好和差，说明压力会导致视力下降，当压力减轻时，视力会改善。方法：我们调查了9个CAM领域：冥想、心身疗法、瑜伽、运动疗法、能量疗法、针灸、按摩疗法、灵性/宗教和草药疗法/芳香疗法。结果：95%的受访者至少尝试了九个CAM区域中的一个。75%的人使用过营养补充剂，包括叶黄素(47%)、越橘(32)、维生素A棕榈酸酯(36)和二十二碳六烯酸(23%)。一些人尝试冥想(47%)和瑜伽(31%)。据报道，在使用瑜伽、冥想和心身疗法的人中，分别有93%、92%和87%的人压力和焦虑水平有所改善。许多尝试了心身疗法(40%)或针灸疗法(50%)的人，都怀着对抗RP的愿望而使用它。65%的针灸使用者和20%至35%的其他CAM区域的使用者的视力受到主观影响。那些表示他们的视力至少受到一种CAM影响的人(35%)比那些不认为视力受到影响的人(59%对84%)在统计学上更有可能需要放大才能阅读(即他们已经失去了更多的视力，并取得了进展)。结论：RP患者正在使用CAM，并正在经历一些对视力和身体/情绪健康的影响。临床医生和研究人员应该意识到它的使用。有必要进行CAM干预的临床试验，以试图验证这些发现。
Background: Benefits of complementary and alternative medicine (CAM)-related interventions have been demonstrated for patients with chronic, systemic diseases in which stress, anxiety and disability are prevalent. Subjects with retinitis pigmentosa (RP) commonly indicate that they have 'good' and 'bad' vision days, stating that stress causes a decrease in vision and that vision improves when the stress is alleviated. We assessed CAM use by RP patients and its perceived effectiveness.Methods: We enquired about nine CAM areas: meditation, mind-body therapies, yoga, movement therapies, energy therapies, acupuncture, massage therapy, spirituality/religion and herbal therapies/aromatherapy. Ninety-six RP patients with any level of vision completed an anonymous internet survey.Results: Ninety-five per cent of respondents tried at least one of the nine CAM areas. Seventy-five per cent have used nutritional supplements, including lutein (47 per cent), bilberry (32), vitamin A palmitate (36) and docosahexaenoic acid (23 per cent). Some tried meditation (47) and yoga (31 per cent). Stress and anxiety levels were reported as improved in 93, 92 and 87 per cent of those who used yoga, meditation and mind-body therapies, respectively. Many of those who tried mind-body therapies (40) or acupuncture (50 per cent), used it with a desire to fight RP. Vision was subjectively affected in 65 per cent of acupuncture users and from 20 to 35 per cent of the users of the other CAM areas. Those who indicated that their vision was affected by at least one type of CAM (35 per cent) were statistically significantly more likely to require magnification to read (that is, they had lost more vision and RP had progressed), than those who did not believe vision was impacted (59 versus 84 per cent).Conclusions: RP patients are using CAM and are experiencing some impact on vision and physical/emotional well-being. Clinicians and researchers should be aware of its use. Clinical trials with CAM interventions are necessary to attempt to validate these findings.