TAILORING INFORMATION PROVISION AND CONSENT PROCESSES TO RESEARCH CONTEXTS: THE VALUE OF RAPID ASSESSMENTS
TAILORING INFORMATION PROVISION AND CONSENT PROCESSES TO RESEARCH CONTEXTS: THE VALUE OF RAPID ASSESSMENTS
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DOI：
10.1525/jer.2012.7.1.37
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发表时间：
2012-02-01
影响因子：
1.3
通讯作者：
Ayele, Fasil Tekola
中科院分区：
文献类型：
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作者：
Bull, Susan;Farsides, Bobbie;Ayele, Fasil Tekola
指南要求，研究的同意过程应适当地适应其文化背景。本文讨论了使用快速评估，以确定在冈比亚和埃塞俄比亚的研究解释研究时产生的文化和伦理问题。这些评估深入了解了提供信息的适当方式，以最大限度地减少羞辱弱势研究群体的风险;研究参与者对应提供的关于研究的最重要信息的看法及其对研究的理解;以及对自愿参与决定的感知限制。这些见解表明，快速评估是一种相对快速和廉价的干预措施，可以提供有价值的信息，以帮助根据研究背景调整信息提供和同意过程，同时保持和加强对参与者的基本保护。
GUIDANCE REQUIRES THAT CONSENT processes for research be appropriately tailored to their cultural context. This paper discusses the use of rapid assessments to identify cultural and ethical issues arising when explaining research in studies in The Gambia and Ethiopia. The assessments provided insights into appropriate ways of providing information to minimize the risk of stigmatizing vulnerable research populations; research participants' views about the most important information to provide about research and their understandings of research; and perceived constraints upon reaching voluntary decisions about participation. These insights demonstrate that rapid assessments are a relatively quick and inexpensive intervention that can provide valuable information to assist in the tailoring of information provision and consent processes to research context while maintaining and enhancing participants' fundamental protections.