Patients' perceptions of the effects of systemic lupus erythematosus on health, function, income, and interpersonal relationships: A comparison with Wegener's granulomatosis
Patients' perceptions of the effects of systemic lupus erythematosus on health, function, income, and interpersonal relationships: A comparison with Wegener's granulomatosis
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DOI：
10.1002/art.10341
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发表时间：
2002-04-15
期刊：
影响因子：
--
通讯作者：
Tervaert, JWC
中科院分区：
文献类型：
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作者：
Boomsma, MM;Bijl, M;Tervaert, JWC
目标。描述患者对系统性红斑狼疮(SLE)和韦格纳肉芽肿(WG)对健康、功能、收入和人际关系的影响。对114例SLE患者和79例WG患者进行自填式问卷调查。患者被诊断为SLE或WG的中位数分别为10年和5年。所有患者都经历了实质性的功能障碍。三分之二的SLE或WG患者报告称，周期性或永久性地无法在家里和/或工作中进行日常活动。此外，SLE和WG对他们的心理和社会生活产生了相当大的影响，影响了他们的幸福感，改变了他们的关系。我们的研究表明，SLE和WG与导致身体和职业残疾的大量医学发病率有关。系统性红斑狼疮对患者的生活有深远的影响，类似于WG患者的经历。
Objective. To describe the patients' perceptions of the effects of systemic lupus erythematosus (SLE) and Wegener's granulomatosis (WG) on health, function, income, and interpersonal relationships.Methods. 114 patients with SLE, and 79 patients with WG completed a self-administered questionnaire. Patients had been diagnosed with SLE or WG for a median period of 10 and 5 years, respectively.Results. All patients experienced substantial functional morbidity. Two-thirds of the patients with SLE or WG reported either a periodic or permanent inability to perform daily activities at home and/or at work. Furthermore, SLE as well as WG had a considerable impact upon the psychological and social life, affecting their happiness and altering relationships.Conclusion. Our study demonstrates that SLE and WG are associated with substantial medical morbidity resulting in physical and occupational disability. SLE has a profound impact on patients' lives, similar to that experienced in patients with WG.