Narrative research methods in palliative care contexts: two case studies.

Narrative research methods in palliative care contexts: two case studies.
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姑息治疗背景下的叙事研究方法:两个案例研究。

DOI:
10.1016/j.jpainsymman.2008.05.006
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发表时间:
2009
影响因子:
4.7
通讯作者:
Thomas C
Thomas C
中科院分区:
医学2区
文献类型:
--
作者:
Thomas C

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迄今为止,叙事方法在临终病人的研究中发挥的作用不大,值得更广泛地了解。本文通过对两名晚期癌症患者及其配偶的访谈中收集的半结构化访谈数据的叙述分析,说明了这些方法的效用和价值。本文概述并讨论了与这两个案例研究相关的方法和发现。作者的论点是,对病人和非正式护理人员的自然故事的分析关注可以为个人感知的疾病状态和症状、护理相关的需求、行为和欲望提供新的视角。此外,在生命结束时共享许多风险和需求标记的两个案例的并列说明了患者经验帐户的叙述分析如何有助于揭示与护理管理相关的案例之间的重要区别。
Narrative methods have played a minor role in research with dying patients to date, and deserve to be more widely understood. This article illustrates the utility and value of these methods through the narrative analysis of semi-structured interview data gathered in a series of interviews with two terminally ill cancer patients and their spouses. The methods and findings associated with these two case studies are outlined and discussed. The authors' contention is that an analytical focus on the naturalistic storytelling of patients and informal carers can throw new light on individuals' perceived illness states and symptoms, care-related needs, behaviors, and desires. In addition, the juxtaposition of two cases that share a number of markers of risk and need at the end of life illustrates how the narrative analysis of patients' experiential accounts can assist in uncovering important distinctions between cases that are of relevance to care management.
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DOI: 10.1097/00006842-196407000-00012
发表时间: 1964
影响因子: 3.3
作者:
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