Co-research with older people: Perspectives on impact
Co-research with older people: Perspectives on impact
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DOI：
10.1177/1473325014556791
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发表时间：
2015-01-01
影响因子：
1.7
通讯作者：
Hall, Kelly
中科院分区：
文献类型：
--
作者：
Littlechild, Rosemary;Tanner, Denise;Hall, Kelly
尽管与老年人合作的研究发展速度慢于与其他一些服务用户群体的合作，但越来越多的健康和社会护理研究让老年人作为联合研究人员。我们在现有证据的基础上解决了两个关键领域。首先，尽管针对老年人的参与性研究普遍有所增长，但某些群体往往被排除在外。我们特别关注一个由患有痴呆症的老年人以及来自黑人和少数民族社区的老年人作为联合研究人员参与的项目。他们在研究过程的各个阶段与学术研究人员合作，探索其他老年人在护理服务之间过渡的经历。其次，最近的文献表明缺乏对参与的批判性评估，认为研究人员倾向于强调基于对过程的回顾性叙述的积极因素，而不是批判性地评估参与的影响。本文批判性地阐述了参与式方法在研究项目不同阶段的影响，并从不同利益相关者的角度对其进行了评估。在这样做的过程中，我们进行了尖锐的批评，这些批评声称，许多服务用户的参与活动非但没有赋予服务用户权力，反而加剧了对他们的压迫。我们的结论是，针对边缘化老年人的参与性研究有可能在个人和社会层面实现有意义的变革。然而，鉴于其危险和局限性，我们认为有必要从过程中各方的角度仔细评估参与式研究的影响。
Although research in partnership with older people has been slower to develop than that with some other service user groups', there are a growing number of health and social care studies that have involved older people as co-researchers. We build on this existing evidence by addressing two key areas. First, despite the growth of participatory research with older people generally, some groups tend to be excluded. We focus particularly on a project in which older people with dementia and older people from a black and minority ethnic community were involved as co-researchers. They worked with academic researchers in all stages of the research process, exploring other older people's experiences of transitions between care services. Second, recent literature suggests a lack of critical evaluation of involvement, arguing that researchers tend to emphasise the positives on the basis of retrospective narrative accounts of the process, rather than critically appraising the impact of involvement. This article offers a critical account of the impact of a participatory approach at different stages of a research project, evaluating this from the perspective of different stakeholders. In so doing, we engage with incisive critiques which claim that, far from empowering service users, much service user involvement activity contributes to their oppression. We conclude that participatory research with marginalised older people has the potential to achieve meaningful change at both individual and social levels. However, in view of its dangers and limitations, we argue the need for the impact of participatory research to be carefully evaluated from the perspectives of all parties in the process.