WHOSE HEALTH IS IT - VIEWS ABOUT DECISION-MAKING AND INFORMATION-SEEKING FROM PEOPLE WITH HIV-INFECTION AND THEIR PROFESSIONAL CARERS

WHOSE HEALTH IS IT - VIEWS ABOUT DECISION-MAKING AND INFORMATION-SEEKING FROM PEOPLE WITH HIV-INFECTION AND THEIR PROFESSIONAL CARERS
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DOI:
10.1080/09540129408258647
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发表时间:
1994-01-01
影响因子:
1.7
通讯作者:
GAZZARD, B
GAZZARD, B
中科院分区:
医学4区
文献类型:
--
作者:
CATALN, J;BRENER, N;GAZZARD, B

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采用标准化的自我报告工具,研究HIV感染者及其专业护理人员对患者参与决策和信息寻求的看法。病人和工作人员报告说,他们非常希望病人参与到他们的护理中来,但两组之间存在着重要的差异。工作人员对患者参与决策的偏好高于患者自身,而对信息寻求的偏好则相反。在专业群体和有症状和无症状的患者之间存在差异,社会工作者普遍更倾向于患者的自主性,而医生的自主性较低。有症状患者对自主的偏好往往低于无症状患者。讨论了研究结果的意义和现实意义。
The views of people with HIV and their professional carers about patients' views on involvement in decision-making and information-seeking were studied, using a standardized self-report instrument. Patients and staff reported high levels of desire for patients' involvement in their care, but there were important differences between groups. Staff had higher preference for patients' involvement in decision-making than the patients themselves, while the opposite was the case for information-seeking. There were differences between professional groups and symptomatic and asymptomatic patients, social workers generally reporting higher preference for patients' autonomy, while doctors reported lower levels. Symptomatic patients tended to have lower preference for autonomy than asymptomatic ones. The significance and practical implications of the findings are discussed.