Evaluating the quality of dying and death
Evaluating the quality of dying and death
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DOI：
10.1016/s0885-3924(01)00333-5
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发表时间：
2001-09-01
影响因子：
4.7
通讯作者：
Curtis, JR
中科院分区：
文献类型：
--
作者：
Patrick, DL;Engelberg, RA;Curtis, JR
我们提出了一个模型，用于评估死亡和死亡的基础上引出的概念的质量。文献回顾，定性访谈的人和没有慢性和终端条件，并考虑理想的测量属性。我们将死亡和死亡的质量定义为一个人对死亡和死亡时刻的偏好与其他人报告的人实际死亡的观察一致的程度。预期的一致性水平因死亡周围的情况而改变，这可能会阻止遵循患者的先前偏好。定性数据分析产生了六个概念领域：症状和个人护理，死亡的准备，死亡的时刻，家庭，治疗偏好，和整个人的关注。这些领域包括31个方面，可以由患者和其他人在死亡前对其重要性进行评估，并在死亡后由重要的其他人或临床医生进行评估，以评估死亡体验的质量。该模型利用个人对临终体验的偏好，来告知他人在死后对这种体验的评价。这一操作定义将指导验证死亡经验质量的死后报告和评估干预措施，以提高临终关怀的质量。(C)美国癌症疼痛缓解委员会，2001年。
We propose a model for evaluating the quality of dying and death based on concepts elicited from. literature review, qualitative interviews with persons with and without chronic and terminal conditions, and consideration of desirable measurement properties. We define quality of dying and death as the degree to which a person's preferences for dying and the moment of death agree with observations of how the person actually died, as reported by others. Expected level of agreement is modified by circumstances surrounding death that may prevent following patient's Prior Preferences. Qualitative data analysis yielded six conceptual domains: Symptoms and personal care, preparation for death, moment of death, family, treatment preferences, and whole person concerns. These domains encompass 31 aspects that can be rated by patients and others as to their importance prior to death and assessed by significant others or clinicians after death to assess the quality of the dying experience. The proposed model uses personal preferences about the dying experience to inform evaluation of this experience by others after death. This operational definition will guide validation of after-death reports of the quality of dying experience and evaluation of interventions to improve quality of end-of-life care. (C) U.S. Cancer Pain Relief Committee, 2001.