Challenges and Growth: Lived Experience of Adolescents and Young Adults (AYA) with a Sibling with ASD.
Challenges and Growth: Lived Experience of Adolescents and Young Adults (AYA) with a Sibling with ASD.
复制标题
挑战与成长：青少年和年轻人 (AYA) 与患有自闭症谱系障碍的兄弟姐妹的生活经历。
DOI：
10.1007/s10803-021-05135-0
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发表时间：
2021
影响因子：
3.9
通讯作者：
Traeger,Lara
中科院分区：
文献类型：
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作者：
Iannuzzi,Dorothea;Fell,Lucy;Luberto,Christina;Goshe,BrettM;Perez,Giselle;Park,Elyse;Crute,Sydney;Kuhlthau,Karen;Traeger,Lara
青少年和年轻成人（AYA）自闭症患者的兄弟姐妹经历了独特的挑战，可以促进成长和情绪失调。本研究探讨了兄弟姐妹和父母关于兄弟姐妹生活经历的报告，并从这些经历中确定了学习、压力源和关注点。对20名神经典型（NT） AYA兄弟姐妹（13-24岁）和21名家长进行了访谈。从数据分析中得出的主题包括：(1)学习、共情和同情；(2)功能障碍程度与兄弟姐妹关系的性质之间的关系；(3)不愿与同伴分享兄弟姐妹的信息；(4)伴有不可预测行为的过度警惕；(5)对未来的担忧和担忧。这些发现有助于现有文献对神经型兄弟姐妹生活经历的影响和本质的研究。
Adolescent and young adult (AYA) siblings of individuals with autism experience unique challenges that can promote both growth and emotional maladjustment. This study explored sibling and parent reports of siblings’ lived experiences and identified learning, stressors, and concerns from those experiences. 20 neurotypical (NT) AYA siblings (ages 13–24), and 21 parents were interviewed. Themes that emerged from the data analysis included: (1) learning, empathy, and compassion (2) relationship between the degree of functional impairment and the nature of the sibling relationship; (3) reluctance to share information about siblings with peers; (4) hypervigilance associated with unpredictable behavior; (5) worries and concerns about the future. These findings contribute to the existing literature on the impact and nature of neurotypical siblings’ lived experience.