The everyday life of adults with Down syndrome
The everyday life of adults with Down syndrome
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DOI：
10.1111/j.1468-3148.2007.00418.x
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发表时间：
2008-09-01
影响因子：
2.4
通讯作者：
Carr, Janet
中科院分区：
文献类型：
--
作者：
Carr, Janet
研究人员对唐氏综合症患者进行了日常生活方面的研究，从婴儿期到21岁，再到30岁、35岁和40岁时反复进行了随访。在相同年龄的非残疾婴儿作为对照样本。方法对父母（通常是母亲）和/或照顾者进行了关于人们的健康、独立性、职业、休闲活动和社会关系的访谈。结果与结论唐氏综合征患者的健康状况虽然不如对照组好，但仍相当良好。参加继续教育的人数增加，参加社会教育中心的人数减少，少数人就业。超过三分之二的人至少参加一项运动，尽管随着时间的推移，参与的减少并不比一般人群多。不到一半的唐氏综合症患者被认为能够独自留在家里超过一个小时，或者独自走出花园，大多数人的社会关系受到限制。
Background Aspects of daily life have been considered in a population of people with Down syndrome, followed repeatedly from infancy to 21-years old, and again at 30-, 35- and 40-years old. A control sample of non-disabled babies were seen at the same ages.Mehtod Parents (usually the mothers) and/or carers were interviewed about the people's health, independence, occupation, leisure activities and social relationships.Results and Conclusions The health of the people with Down syndrome continued to be reasonably good though less good than that of the controls. Engagement in further education increased and attendance at social education centres decreased, while a minority were in employment. Over two-thirds participated in at least one sport, and although participation decreased over time the fall-off was no more than is seen in the general population. Fewer than half the people with Down syndrome were thought capable of being left in the house alone for over an hour or to go out alone beyond the garden, and social relationships for the majority were limited.