The patient clinical information system (PatCIS): technical solutions for and experience with giving patients access to their electronic medical records
The patient clinical information system (PatCIS): technical solutions for and experience with giving patients access to their electronic medical records
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DOI：
10.1016/s1386-5056(02)00070-9
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发表时间：
2002-12-18
影响因子：
4.9
通讯作者：
Kushniruk, AW
中科院分区：
文献类型：
--
作者：
Cimino, JJ;Patel, VL;Kushniruk, AW
随着健康记录演变成电子形式，越来越多的需求是为患者提供访问它们。我们试图研究这种访问的特征和影响，以确定患者如何使用这些记录，它对他们有什么认知影响，以及它如何影响他们与医疗保健提供者的关系：我们创建了患者临床信息系统（PatCIS），与纽约长老会医院（NYPH）的临床数据存储库接口，允许患者添加和查看他们的医疗数据。我们还提供教育资源和自动化建议程序。我们在36个月的时间内为13名受试者提供了系统访问权限，并在系统的使用日志中查看了他们的活动。我们还通过问卷和电话采访收集了数据。我们共收集了223个患者月的数据。我们发现，患者对该系统的使用各不相同，从每月一次或更少到每天一次或多次。所有患者主要使用该系统审查实验室结果。他们和他们的医生都认为，使用该系统增强了患者对自己病情的了解，并改善了他们与医生的沟通。研究期间未发生不良事件。(C)2002爱思唯尔科学爱尔兰有限公司保留所有权利。
As health records evolve into electronic form, increasing demand is being made to provide patients with access to them. We sought to study the character and impact of such access to determine how patients use such records, what cognitive effects it has on them, and how it affects their relationship with their health care providers:We created the Patient Clinical Information System (PatCIS) to interface with the clinical data repository at New York Presbyterian Hospital (NYPH) to allow patients to add to and review their medical data. We also provided educational resources and automated advice programs. We provided access to the system to thirteen subjects over a 36-month period and reviewed their activities in the system's usage log. We also collected data via questionnaire and telephone interview. We collected data for a total of 223 patient months. We found that patients varied in their use of the system, from once a month or less to one or more times per day. All patients primarily used the system to review laboratory results. Both they and their physicians believed that use of the system enhanced the patients' understanding of their conditions and improved their communication with their physicians. There were no adverse events encountered during the study. (C) 2002 Elsevier Science Ireland Ltd. All rights reserved.