More than just characters in a story: effective and meaningful involvement of young people in mental health research
More than just characters in a story: effective and meaningful involvement of young people in mental health research
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DOI：
10.1108/jpmh-07-2018-0053
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发表时间：
2019-03-18
影响因子：
1.4
通讯作者：
Kelly, Clare
中科院分区：
文献类型：
--
作者：
MacSweeney, Niamh;Bowman, Sarah;Kelly, Clare
目的 人们对青少年心理健康的了解仍然知之甚少。为了真正增进我们对青少年心理健康的理解，我们必须将我们的注意力从青少年作为研究对象或“人物”转向以他们为积极推动者或“作者”。这种动态变化属于公众和患者参与（PPI）的旗帜，这是一项不断发展的运动，强调公众有意义地参与健康研究。本文旨在讨论这些问题。设计/方法/方法 在这里，作者旨在通过描述青年参与儿科研究的新兴实践并概述如何将这些实践扩展到青年心理健康领域来促进这种焦点的转变。作者特别强调了年轻人咨询小组（YPAG），通过该小组，年轻人可以以积极、有意义和互利的方式参与研究生命周期的每一步。结果 YPAG 由作为研究伙伴的年轻人组成，为一系列活动提供指导。在健康领域，YPAG 提供了新的视角，产生了宝贵的知识，并改变了青年参与研究的态度。此外，它们为年轻人提供了真正的机会来塑造研究，以解决他们在日常生活中遇到的问题。原创性/价值 青少年心理健康 YPAG 的建立将增强作者的研究问题、设计、交付和影响。作者概述了研究人员如何拥抱 PPI 并与年轻人合作，讲述青少年心理健康的不同故事。
Purpose The story of youth mental health remains poorly understood. To truly progress our understanding of youth mental health, we must shift our focus from one in which young people are the subjects, or "characters", of research efforts to one in which they are active agents, or "authors". This change in dynamic falls under the banner of public and patient involvement (PPI), a growing movement that emphasises the meaningful involvement of the public in health research. The paper aims to discuss these issues. Design/methodology/approach Here, the authors aim to stimulate this shift in focus by describing emerging practices of youth involvement in paediatric research and outlining how such practices can be extended to the domain of youth mental health. In particular, the authors highlight Young Persons' Advisory Groups (YPAG), through which young people can be involved in an active, meaningful and mutually beneficial manner, at each step in the research life cycle. Findings A YPAG comprises young people who act as research partners, providing guidance on a range of activities. In the health domain, YPAGs have provided fresh perspectives, generated valuable knowledge and changed attitudes about youth involvement in research. Moreover, they provide young people with genuine opportunities to shape research so that it addresses issues they encounter in their everyday lives. Originality/value The establishment of youth mental health YPAGs will enhance the authors' research questions, design, delivery and impact. The authors outline how researchers can embrace PPI and work together with young people to tell a different story of youth mental health.