Patient advocacy organizations: institutional conflicts of interest, trust, and trustworthiness.
Patient advocacy organizations: institutional conflicts of interest, trust, and trustworthiness.
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DOI:
10.1111/jlme.12078
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发表时间:
2013
期刊:
影响因子:
--
通讯作者:
Rose SL
中科院分区:
文献类型:
--
作者:
Rose SL
Patient advocacy organizations (PAOs) provide patient- and caregiver-oriented education, advocacy, and support services. PAOs are formally organized nonprofit groups that (a) concern themselves with medical conditions or potential medical conditions and (b) have a mission and take actions that seek to help people affected by those medical conditions or to help their families. Examples of PAOs include the American Cancer Society, the National Alliance on Mental Illness, and the American Heart Association. These organizations advocate for, and provide services to, millions of people with physical and mental conditions — such as cancer, mental illness, diabetes, and cardiovascular disease — via their outreach, meetings, counseling, websites, and published materials. A PAO usually seeks to raise public awareness of a disease’s symptoms, risk factors, and treatment options and promotes research to cure or to prevent that disease.
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