Patient advocacy organizations: institutional conflicts of interest, trust, and trustworthiness.

Patient advocacy organizations: institutional conflicts of interest, trust, and trustworthiness.
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DOI:
10.1111/jlme.12078
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发表时间:
2013
期刊:
The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics
影响因子:
--
通讯作者:
Rose SL
Rose SL
中科院分区:
其他
文献类型:
--
作者:
Rose SL

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患者倡导组织(PAOs)提供面向患者和护理人员的教育、倡导和支持服务。公益组织是正式组织的非营利组织,它们(a)关注医疗状况或潜在的医疗状况,(b)有一个使命并采取行动,寻求帮助受这些医疗状况影响的人或帮助他们的家人。PAOs的例子包括美国癌症协会、全国精神疾病联盟和美国心脏协会。这些组织通过外联、会议、咨询、网站和出版材料,为数百万患有身体和精神疾病(如癌症、精神疾病、糖尿病和心血管疾病)的人倡导并提供服务。PAO通常旨在提高公众对疾病症状、风险因素和治疗方案的认识,并促进治疗或预防该疾病的研究。
Patient advocacy organizations (PAOs) provide patient- and caregiver-oriented education, advocacy, and support services. PAOs are formally organized nonprofit groups that (a) concern themselves with medical conditions or potential medical conditions and (b) have a mission and take actions that seek to help people affected by those medical conditions or to help their families. Examples of PAOs include the American Cancer Society, the National Alliance on Mental Illness, and the American Heart Association. These organizations advocate for, and provide services to, millions of people with physical and mental conditions — such as cancer, mental illness, diabetes, and cardiovascular disease — via their outreach, meetings, counseling, websites, and published materials. A PAO usually seeks to raise public awareness of a disease’s symptoms, risk factors, and treatment options and promotes research to cure or to prevent that disease.
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