Electronic Patient-Reported Outcomes: The Time Is Ripe for Integration Into Patient Care and Clinical Research.
Electronic Patient-Reported Outcomes: The Time Is Ripe for Integration Into Patient Care and Clinical Research.
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DOI：
10.14694/edbk_158749
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发表时间：
2016-01-01
期刊：
影响因子：
--
通讯作者：
Schwartzberg, Lee
中科院分区：
文献类型：
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作者：
Schwartzberg, Lee
在提供癌症护理的新兴团队方法中，收集患者报告的结果（PRO）提供了对整个癌症连续体的治疗不良反应，疾病并发症，功能状态和心理状态的纵向监测，供所有提供者使用。电子系统提供了额外的功能，包括单个症状项目和汇总量表的简单量化、标准化和患者调查的纵向跟踪，以进行随时间的趋势分析。理想的电子PRO（ePRO）平台具有临床相关性、经过验证且可靠，并可为患者提供可用性。此外，它应该允许自动响应患者，具有调度功能，并向研究中心工作人员和患者发送实时警报。临床界面应易于阅读并集成到电子病历中。多个ePRO系统，通常使用电子平板电脑，已经创建并开始广泛部署。患者监护仪是已发展成为综合患者参与平台的系统的一个示例，该系统具有针对移动的健康使用的系统调查和功能的完整审查。最近的临床试验已经将ePRO系统确立为提供信息的有效方法，这有助于改善患者结局，包括减少卫生资源利用和延长治疗时间。ePRO也越来越多地被纳入临床试验，在临床试验中，它们可以提供比替代方法更全面的不良事件报告。移动的设备有可能成为提供者团队的所有成员在护理点和诊所访问之间与患者进行沟通的方法，以优化护理提供。
In the emerging team-based approach to delivering cancer care, collecting patient-reported outcomes (PROs) provides longitudinal monitoring of treatment adverse effects, disease complications, functional statuses, and psychological states throughout the cancer continuum for all providers to use. Electronic systems offer added capabilities, including easy quantitation of individual symptom items and aggregated scales, standardization, and longitudinal tracking of patient surveys for trend analysis over time. An ideal electronic PRO (ePRO) platform is clinically relevant, validated, and reliable and would offer patient usability. Additionally, it should allow for automated responses to and from patients, have scheduling functionality, and send real-time alerts to site personnel and patients. Clinical interfaces should be easy to read and integrated into the electronic medical record. Multiple ePRO systems, often using electronic tablets, have been created and are beginning to be widely deployed. The Patient Care Monitor is one example of a system that has evolved into a comprehensive patient engagement platform, with a complete review of systems survey and capabilities for mobile health usage. Recent clinical trials have established ePRO systems as an effective method of providing information, which aids improved patient outcomes, including reduced health resource utilization and longer time on therapy. ePROs are also increasingly incorporated into clinical trials, where they can provide more thorough reporting of adverse events than can be captured by alternative methods. Mobile devices have the potential to become the method by which all members of the provider team communicate with patients both at the point-of-care and between clinic visits to optimize care delivery.