Parent Report of Conversations with Their Adolescents with Intellectual Disability
Parent Report of Conversations with Their Adolescents with Intellectual Disability
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DOI：
10.1111/jar.12090
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发表时间：
2014-11-01
影响因子：
2.4
通讯作者：
Larzelere, Robert E.
中科院分区：
文献类型：
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作者：
Jones, Jennifer L.;Oseland, Lauren M.;Larzelere, Robert E.
背景本研究的目的是检查智力障碍青少年家庭中关于差异和残疾的家长报告。材料和方法参与者包括 50 名父母（44 名母亲、4 名父亲和另外两名照顾者）及其智力障碍青少年（M 年龄=15.9）。家长对有关与青少年对话的开放式问题提供了书面答复。青少年完成了自我概念和自我决定的测量。结果大多数 (66%) 的父母报告与青少年谈论差异和/或残疾。与之前的研究一致，其中一些对话是为了应对社会排斥（例如孩子被欺负）。了解孩子残疾病因的父母更有可能与孩子谈论他或她的残疾状况。结论父母的叙述说明了他们在向青少年解释残疾方面的努力。专业人士面临的挑战是考虑如何促进父母和青少年之间的主动对话。
BackgroundThe purpose of this study was to examine parent report of conversations about difference and disability in families of adolescents with intellectual disability.Materials and MethodsParticipants included 50 parents (44 mothers, four fathers, and two other caregivers) and their adolescents with intellectual disability (M age=15.9). Parents provided written responses to open-ended questions regarding conversations with their adolescent. Adolescents completed measures of self-concept and self-determination.ResultsThe majority (66%) of parents reported talking to their adolescent about difference and/or disability. Consistent with previous research, some of these conversations were in response to social exclusion (e.g. child was bullied). Parents who knew the aetiology of their child's disability were significantly more likely to talk with their child about his or her disabling condition.ConclusionsParents' narratives illustrate their struggle to explain disability to their adolescent. Professionals are challenged to consider how to promote proactive conversations between parents and adolescents.