Pilot Evaluation of a Palliative and End-of-Life Communication Intervention for Parents of Children With a Brain Tumor
Pilot Evaluation of a Palliative and End-of-Life Communication Intervention for Parents of Children With a Brain Tumor
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DOI：
10.1177/1043454216676836
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发表时间：
2017-05-01
影响因子：
1.7
通讯作者：
Haase, Joan E.
中科院分区：
文献类型：
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作者：
Hendricks-Ferguson, Verna L.;Pradhan, Kamnesh;Haase, Joan E.
为患有严重疾病的儿童的父母提供及时的姑息治疗和临终关怀（PC/EOL）信息是国家卫生保健的优先事项。本研究的目的是确定与PC/EOL沟通干预相关的可行性、可接受性和家长反应，标题为沟通计划：脑肿瘤患儿家长的早期至生命结束（COMPLENT）。该研究是一项针对父母压力和应对结果的2个地点前瞻性单组试点研究。样本包括11名儿童的13名父母（即11个家庭）。在诊断后的前6个月，我们在4个时间点（基线和3个治疗后）评估了父母的结局。我们的研究结果包括决策后悔的显著下降（P = 0.0089）;强烈的，显著增加的希望（P = 0.0001）;和显著减少的不确定性（P = 0.04）。随着时间的推移，超过一半的父母（61.5%）更愿意收到有关孩子当前状况和PC/EOL选项的信息。我们的研究结果提供的证据表明，COMPRESSION干预是可行的和可接受的，并产生了有希望的影响3父母的结果（即，决定后悔，希望，和不确定性）在父母的脑肿瘤。进一步的研究表明，以评估与癌症儿童的父母和对照组的更大样本的COMPLENTY。
Providing timely palliative and end-of-life care (PC/EOL) information to parents of children with a serious illness is a national health care priority. The goals of this study were to determine feasibility, acceptability, and parent responses related to a PC/EOL communication intervention, titled Communication Plan: Early through End of Life (COMPLETE) to parents of children with a brain tumor. The study was a 2-site prospective, single-group pilot study targeting parents' stress and coping outcomes. The sample included 13 parents of 11 children (ie, 11 families). During the first 6 months postdiagnosis, we evaluated parent outcomes at 4 time points (baseline and 3 post-sessions). Our findings included significant decline in decision regret (P = .0089); strong, significantly increased hope (P .0001); and significantly decreased uncertainty (P = .04). Over time, more than half of the parents (61.5%) preferred to receive information about their child's current condition and PC/EOL options. Our findings provide evidence to suggest that the COMPLETE intervention is feasible and acceptable and produces promising effects on 3 parent outcomes (ie, decision regret, hope, and uncertainty) in parents of children with a brain tumor. Further research is indicated to evaluate COMPLETE with a larger sample of parents of children with cancer and with a control group.