African Americans' and Hispanics' information needs about cancer care.
African Americans' and Hispanics' information needs about cancer care.
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DOI：
10.1007/s13187-014-0721-z
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发表时间：
2015-06
期刊：
影响因子：
--
通讯作者：
Quinn GP
中科院分区：
文献类型：
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作者：
Muñoz-Antonia T;Ung D;Montiel-Ishino FA;Nelson A;Canales J;Quinn GP
很少有研究报告非洲裔美国人和西班牙裔（AA和H）人群在提供临床试验的机构寻求癌症治疗时的信息需求。Moffitt癌症中心（MCC）试图确定和检查决策过程，感知，以及AA和H社区癌症护理服务的首选沟通渠道，以制定一份营销建议清单。五个焦点小组（N=45）组成的两个AA和三个H进行了四个县的MCC集水区在坦帕，佛罗里达州。参与者被问及他们的看法，知识，态度和信念有关癌症护理和MCC。焦点小组进行录音和逐字记录进行了分析，使用内容分析。AA和H参与者之间的反应相似。参与者从媒体来源和口碑中获得一般健康和癌症信息，并更喜欢听到患者的推荐。有人担心成本，保险范围和癌症中心的实际地理位置。一般来说，H参与者不反对参与癌症临床试验/研究，而AA参与者则比较犹豫。大多数参与者非常喜欢提供标准护理和临床试验的机构。AA和H参与者在沟通渠道方面有着相似的关注和偏好，但每组都有特定的信息需求。AA和H的看法和偏好必须加以探讨，以成功和有效地增加癌症临床试验的参与。
Few studies have reported on African American and Hispanic (AA and H) populations’ informational needs when seeking cancer care at an institution that offers clinical trials. Moffitt Cancer Center (MCC) sought to identify and examine the decision making process, the perceptions, and the preferred channels of communication about cancer care services for AA and H communities in order to develop a list of marketing recommendations. Five focus groups (N=45) consisting of two AA and three H were conducted in four counties of the MCC catchment area in Tampa, FL. Participants were asked about their perceptions, knowledge, attitudes, and beliefs about cancer care and MCC. Focus groups were audio-recorded and verbatim transcripts were analyzed using content analysis. Similarities in responses were found between AA and H participants. Participants received general health and cancer information from media sources and word of mouth and preferred to hear patient testimonials. There were concerns about costs, insurance coverage, and the actual geographic location of the cancer center. In general, H participants were not opposed to participating in cancer clinical trials/research, whereas, AA participants were more hesitant. A majority of participants highly favored an institution that offered standard care and clinical trials. AA and H participants shared similar concerns and preferences in communication channels, but each group had specific informational needs. The perceptions and preferences of AA and H must be explored in order to successfully and efficiently increase cancer clinical trial participation.