What are We Asking Patients to Do? A Critical Ethical Review of the Limits of Patient Self-Advocacy in the Oncology Setting.
What are We Asking Patients to Do? A Critical Ethical Review of the Limits of Patient Self-Advocacy in the Oncology Setting.
复制标题
我们要求患者做什么？
DOI：
10.1080/20502877.2022.2143742
复制
发表时间：
2023
期刊：
影响因子：
--
通讯作者：
HaganThomas,Teresa
中科院分区：
文献类型：
--
作者：
Wilkenfeld,DanielA;HaganThomas,Teresa
越来越重视患者的自我管理，包括让患者倡导他们的需求和优先事项，通常是一件好事，但患者并不总是想要或可以实现。这一关键的伦理审查的目的是深化当前的话语在病人的自我宣传，暴露各种情况下，病人的斗争自我宣传。使用来自肿瘤患者群体的例子，我们消除了自我宣传的不同概念的歧义，然后对更苛刻的种类（即，健康相关的，信任为基础的，和心理）;我们认为，这些限制是否总是可取的，鼓励病人自我主张方面创建伦理困境。我们的结论是，自我宣传可以被低估和高估多少，它有利于癌症患者，许多情况下是不确定的。最后，医疗服务提供者必须了解患者对他们所经历的挑战的看法，并与他们合作以满足他们的需求。
Increasing emphasis on patient self-management, including having patients advocate for their needs and priorities, is generally a good thing, but it is not always wanted or attainable by patients. The aim of this critical ethical review is to deepen the current discourse in patient self-advocacy by exposing various situations in which patients struggle to self-advocate. Using examples from oncology patient populations, we disambiguate different notions of self-advocacy and then present limits to the more demanding varieties (i.e., health-related, trust-based, and psychological); we argue that these limits create ethical dilemmas with respect to whether it is always desirable to encourage patients to self-advocate. We conclude that self-advocacy can be both under and overrated with respect to how much it benefits the patient with cancer, with many instances being indeterminate. Ultimately, providers must understand the patient's perspective relative to the challenges they are experiencing and work with them to meet their needs.