"You've Gotta know the community": Minority women make recommendations about community-focused health research

"You've Gotta know the community": Minority women make recommendations about community-focused health research
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DOI:
10.1300/j013v47n01_05
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发表时间:
2008-01-01
期刊:
影响因子:
1.6
通讯作者:
Escobar, Celeste
Escobar, Celeste
中科院分区:
医学4区
文献类型:
--
作者:
Pinto, Rogrio M.;Mckay, Mary M.;Escobar, Celeste

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目的:确定少数民族妇女推荐何种方法作为社区参与式卫生研究的最佳方法。为了实现这一目标,本研究将重点放在艾滋病毒预防研究上。方法:2003年,7名非洲裔美国人和7名拉丁裔女性(年龄33至52岁)参加了调查。艾滋病毒预防合作委员会的所有成员都参加了个别面谈,每人约90分钟。与会者讨论了他们对参与性研究的参与,并就卫生研究人员如何更好地参与其社区提出了建议。数据由两名编码员按照标准的内容分析程序独立编码。结果:女性的声音和专业知识有助于指导与健康相关的研究。这项研究表明:(1)参与式艾滋病毒预防研究应该建立在信任和承诺的基础上,从而获得社会支持;(2)研究伙伴应该来自不同的背景,了解社区,愿意为共同的目标而工作;(3)合作伙伴关系应该描绘出一种力量和凝聚力的形象,并清楚地阐明围绕研究项目的使命。意义:为了发展有意义的健康研究,研究人员需要与社区合作者建立长期持续的关系,包括来自不同背景的少数族裔妇女。研究人员应该采取与社区合作的整体方法,并应该考虑他们的研究兴趣与社区的需求。
Objectives: To determine what ethnic and racial minority women recommend as the best approaches to participatory health research in their communities. To achieve this goal, this study focused on HIV prevention research.Methods: In 2003, Seven African American and seven Latina women (ages 33 to 52). all members of an HIV Prevention Collaborative Board, participated in individual interviews, lasting about 90 minutes each. Participants discussed their involvement in participatory research, and made recommendations as to how health researchers might better engage their communities. Data were coded independently by two coders following standard procedure for content analysis.Results: Women's voices and expertise can help guide health-related research. This study shows that: (1) participatory HIV prevention, research should be founded on trust and commitment, leading to social support; (2) research partners ought to come from diverse backgrounds,and be knowledgeable about the community and willing to work on common objectives; and (3) collaborative partnerships ought to portray an image of strength and cohesion, and a clear articulation of the mission around a research project.Implications: To develop meaningful health research, researchers need to establish long-term ongoing relationships with community collaborators, including minority women from diverse backgrounds. Researchers ought to take a holistic approach working with communities, and ought to consider their research interests vis-a-vis the community's needs.