Families of 30-35-Year Olds with Down's Syndrome.
Families of 30-35-Year Olds with Down's Syndrome.
复制标题
30-35 岁患有唐氏综合症的家庭。
DOI：
10.1111/j.1468-3148.2004.00226.x
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发表时间：
2005
影响因子：
2.4
通讯作者：
J. Carr
中科院分区：
文献类型：
--
作者：
J. Carr
背景唐氏综合征（DS）患者及其非残疾对照人群的家庭样本从儿童早期开始就被跟踪，现在这些家庭在他们的儿子和女儿达到30岁和35岁时再次被看到。
方法采用半结构式访谈法，访谈内容包括障碍、行为和技能量表[L。 Wing，Acta Psychologica Scandinavica，Suppl. 285（1980）241]和Holmes的论文（The Quality of Life of Mentally Handicapped Adults and Their Parents，1988，PhD Thesis）中有关休闲和社交生活以及服务体验的内容。
结果大多数父母，现在在他们的60年代末，报告良好的健康和满意的社会生活。 母亲的平均压力分数略高于唐氏综合征组比对照组：可能的解释进行了讨论。只有一个与唐氏综合症后代有关的因素可以被证明会影响压力。几乎没有发现对兄弟姐妹的不良影响。
结论：这项研究与其他研究一致，表明唐氏综合征老年人的家庭适应良好，没有过度的压力。
Background The families of a population sample of people with Down's syndrome (DS), and of their non-disabled controls, have been followed since early childhood, and the families have now been seen again as their sons and daughters reached age 30 and 35 years.
Methods A semi-structured interview schedule was used, including items from the handicaps, behaviour and skills schedule [L. Wing, Acta Psychologica Scandinavica, Suppl. 285 (1980) 241] and from Holmes’ thesis (The Quality of Life of Mentally Handicapped Adults and Their Parents, 1988, PhD Thesis) relating to leisure and social life and experience of services.
Results Most parents, now in their late 60s, reported good health and a satisfactory social life. Mothers’ mean stress scores were slightly higher in the Down's syndrome group than in the controls: possible explanations for this are discussed. Only one factor relating to the offspring with Down's syndrome could be shown to influence stress. Few adverse effects on the siblings were identified.
Conclusions The study is in agreement with others in showing families of older people with Down's syndrome to be well-adjusted and not unduly stressed.
唐氏综合症儿童家庭的父母和家庭福祉：一项比较研究。
影响因子：
2
作者：
VanRiper,M;Ryff,C;Pridham,K
通讯作者：
Pridham,K
住在家里或寄宿安置的智力低下儿童的兄弟姐妹。
DOI：
--
发表时间：
1998
期刊：
Journal of child psychology and psychiatry, and allied disciplines.
影响因子：
--
作者：
Eisenberg,L;Baker,BL;Blacher,J
通讯作者：
Blacher,J
患有严重残疾儿童的兄弟姐妹。
DOI：
--
发表时间：
1989
期刊：
Mental retardation
影响因子：
--
作者：
Wilson,J;Blacher,J;Baker,BL
通讯作者：
Baker,BL