A NEW PATIENT FOCUSED INDEX FOR MEASURING QUALITY-OF-LIFE IN PERSONS WITH SEVERE AND PERSISTENT MENTAL-ILLNESS

A NEW PATIENT FOCUSED INDEX FOR MEASURING QUALITY-OF-LIFE IN PERSONS WITH SEVERE AND PERSISTENT MENTAL-ILLNESS
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DOI:
10.1007/bf00434796
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发表时间:
1993-08-01
影响因子:
3.5
通讯作者:
SAINFORT, F
SAINFORT, F
中科院分区:
医学2区
文献类型:
--
作者:
BECKER, M;DIAMOND, R;SAINFORT, F

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患有严重和持续性精神疾病的人的生活质量往往很差。大多数治疗方案的目标是提高生活质量。不幸的是,现有的方法来评估生活质量是繁琐的,面向研究,而不是临床设置。本研究描述了一种新的以患者为中心的指数的开发、测试和应用的初步步骤,该指数用于测量严重精神疾病患者的生活质量。心理健康生活质量指数(QLI-MH)与现有工具的不同之处在于,它是基于一个易于使用的自我管理的问卷,该问卷评估了共同包含生活质量的九个独立领域。每个域可以根据其对患者的相对重要性单独加权。仪器的不同部分从患者、主治医生和家庭(如果可用)那里征求信息。该工具及其评分系统解决了以前的生活质量测量方法的局限性。
The quality of life in persons with severe and persistent mental illness is often poor. Most treatment programmes have the goal of increasing quality of life. Unfortunately, existing methods to assess qualtiy of life are cumbersome and oriented towards research rather than clinical settings. This study describes preliminary steps in the development, testing and application of a new patient focused index for measuring quality of life in persons with severe mental illness. The Quality of Life Index for Mental Health (QLI-MH) differs from existing instruments in that it is based on an easy to use, self-administered questionnaire that assesses nine separate domains that together encompass quality of life. Each domain can be individually weighted depending on its relative importance to the patient. Different parts of the instrument solicit information from the patient, the primary clinician and, when available, the family. The instrument and its scoring system address limitations of previous approaches to quality of life measurement.