Feasibility and Acceptability to Patients of a Longitudinal System for Evaluating Cancer-Related Symptoms and Quality of Life: Pilot Study of an e/Tablet Data-Collection System in Academic Oncology
Feasibility and Acceptability to Patients of a Longitudinal System for Evaluating Cancer-Related Symptoms and Quality of Life: Pilot Study of an e/Tablet Data-Collection System in Academic Oncology
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DOI：
10.1016/j.jpainsymman.2008.07.011
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发表时间：
2009-06-01
影响因子：
4.7
通讯作者：
Lyerly, Herbert Kim
中科院分区：
文献类型：
--
作者：
Abernethy, Amy P.;Herndon, James E.;Lyerly, Herbert Kim
编程的笔记本式个人电脑（“e/平板电脑”）可以在护理时收集症状和生活质量（QOL）数据。患者在诊所等候区使用电子/平板电脑来完成电子调查。然后信息无线传输到服务器，服务器生成实时报告以供临床就诊期间使用。本研究的目的是确定学术肿瘤学患者是否认为电子/片剂在逻辑上是可接受的，并且是在重复就诊期间向提供者传达症状的令人满意的方式。杜克乳腺癌诊所的 66 名转移性乳腺癌患者参加了研究。 E/平板电脑经过定制，可通过电子方式管理满意度/可接受性调查、几份经过验证的调查问卷以及患者护理监测 (PCM) 症状调查审查。在六个月内的四次访问中，参与者每次都完成了患者满意度/可接受性调查，该调查为当前分析提供了数据。参与者的人口统计数据为：平均年龄 54 岁，77% 为白人，47% 未受过大学教育。参与者表示，e/Tablet 易于阅读 (94%)、易于导航 (99%)，并且重量舒适 (90%)；他们发现使用 e/Tablet 可以轻松回答问题 (98%)。 75% 的人最初表示对 PCM 报告症状感到满意；随着时间的推移，这一比例不断增加。截至上次访问，88% 的参与者表示他们会向其他患者推荐 PCM； 74% 的人认为 e/Tablet 帮助他们记住症状并向临床医生报告。 E/Tablets 提供了一种可行且可接受的方法，用于在学术、三级护理、乳腺癌诊所内收集纵向患者报告的症状和生活质量数据。 J 疼痛症状管理 2009 年；37：1027-1038。 (C) 2009 年美国癌症疼痛缓解委员会。由爱思唯尔公司出版。保留所有权利。
Programmed, notebook-style, personal computers ("e/Tablets") can collect symptom and quality-of-life (QOL) data at the point of care. Patients use an e/Tablet in the clinic waiting area to complete electronic surveys. Information then travels wirelessly to a server, which generates a real-time report for use during the clinical visit. The objective of this study was to determine whether academic oncology patients find e/Tablets logistically acceptable and a satisfactory means of communicating symptoms to providers during repeated clinic visits. Sixty-six metastatic breast cancer patients at Duke Breast Cancer Clinic participated. E/Tablets were customized to electronically administer a satisfaction/acceptability survey several validated questionnaires, and the Patient Care Monitor (PCM) review of symptoms survey. At each of the four visits within six months, participants completed the patient satisfaction/acceptability survey, which furnished data for the current analysis. Participant demographics were: mean age of 54 years, 77% Caucasian, and 47% with less than a college education. Participants reported that e/Tablets were easy to read (94%), easy to navigate (99%), and had a comfortable weight (90%); they found it easy to respond to questions using the e/Tablet (98 %). Seventy-five percent initially indicated satisfaction with PCM for reporting symptoms; this proportion increased over time. By the last visit, 88% of participants indicated that they would recommend the PCM to other patients; 74% fell that the e/Tablet helped them remember symptoms to report to their clinician. E/Tablets offered a feasible and acceptable method for collecting longitudinal patient-reported symptom and QOL data within an academic, tertiaiy care, breast cancer clinic. J Pain Symptom Manage 2009;37:1027-1038. (C) 2009 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved.