No Humans Here: Ethical Speculation on Public Data, Unintended Consequences, and the Limits of Institutional Review
No Humans Here: Ethical Speculation on Public Data, Unintended Consequences, and the Limits of Institutional Review
复制标题
这里没有人类：对公共数据的道德推测、意想不到的后果以及机构审查的局限性
DOI：
10.1145/3492857
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发表时间：
2022
影响因子：
--
通讯作者：
Zimmer, Michael
中科院分区：
文献类型：
--
作者：
Pater, Jessica;Fiesler, Casey;Zimmer, Michael
许多研究团体经常进行超出传统人类受试者研究范围的活动，但仍然经常依赖机构审查委员会（IRB）或类似监管机构的决定来确定伦理决策的范围。作为一个基于美国大学的虚构备忘录，描述了一项关于社交媒体和公共卫生的研究的事后IRB审查，这个设计小说从HCI和社交计算社区当前的争论和不确定性中汲取灵感，这些争论和不确定性围绕着公共数据的使用，隐私，开放科学和意外后果等问题。以强调监管机构作为道德仲裁者的局限性以及研究人员和研究界前瞻性道德考虑的重要性。
Many research communities routinely conduct activities that fall outside the bounds of traditional human subjects research, yet still frequently rely on the determinations of institutional review boards (IRBs) or similar regulatory bodies to scope ethical decision-making. Presented as a U.S. university-based fictional memo describing a post-hoc IRB review of a research study about social media and public health, this design fiction draws inspiration from current debates and uncertainties in the HCI and social computing communities around issues such as the use of public data, privacy, open science, and unintended consequences, in order to highlight the limitations of regulatory bodies as arbiters of ethics and the importance of forward-thinking ethical considerations from researchers and research communities.