Decision-making for persons with cognitive impairment and their family caregivers.

Decision-making for persons with cognitive impairment and their family caregivers.
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DOI:
10.1177/153331750201700406
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发表时间:
2002-07-01
期刊:
American journal of Alzheimer's disease and other dementias
影响因子:
--
通讯作者:
Whitlatch, Carol J
Whitlatch, Carol J
中科院分区:
其他
文献类型:
--
作者:
Feinberg, Lynn Friss;Whitlatch, Carol J

文献摘要

被引文献

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尽管受认知障碍影响的人数很多,但人们对他们及其家人如何就日常生活和长期护理作出选择和决定知之甚少。此外,很少有研究探讨了消费者导向的概念,特别是认知障碍者将决策委托给其他人的能力。本研究通过对51对受访者的个人访谈(即,认知障碍者和家庭照顾者)。结果表明,轻度至中度认知障碍的人能够回答有关他们对日常护理的偏好的问题,并选择一个人,通常是配偶或成年子女,通过识别两个人的利益来代表他们做出各种决定-那些被照顾者和家庭照顾者-我们可以加强未来的研究和实践,促进长期护理消费方向的发展,并推进公共政策,以支持贫困家庭。
Despite the large number of persons affected by cognitive impairment, very little is known about how they and their families make choices and decisions about everyday living and long-term care. Moreover few studies have examined the concept of consumer direction, particularly the ability ofcognitively impaired persons to delegate decision-making to other persons. This study explored decision-making through personal interviews with 51 respondent pairs, or dyads (i.e., the cognitively impaired person and the family caregiver). Results suggest that persons with mild to moderate cognitive impairment are able to answer questions about their preferences for daily care and to choose a person, usually a spouse or adult child, to make a variety of decisions on their behalf by recognizing both voices-those of the care receiver and the family caregiver--we can enhance future research and practice, foster the development of consumer direction in long-term care, and advance public policy to support caregiving families.