The social, economic, emotional, and physical experiences of caregivers for women with female genital fistula in Uganda: A qualitative study.
The social, economic, emotional, and physical experiences of caregivers for women with female genital fistula in Uganda: A qualitative study.
复制标题
乌干达女性生殖器瘘管病女性护理人员的社会、经济、情感和身体经历：一项定性研究。
DOI：
10.1080/17441692.2023.2242458
复制
发表时间：
2023
影响因子：
3.3
通讯作者：
Byamugisha,Josaphat
中科院分区：
文献类型：
--
作者：
ElAyadi,AlisonM;Mitchell,Ashley;Nalubwama,Hadija;Miller,Suellen;Semere,Wagahta;Barageine,JustusK;Korn,AbnerP;Obore,Susan;Lucas,Ruby;Byamugisha,Josaphat
本研究旨在探讨乌干达女性生殖器瘘患者的非正式主要照顾者的第一手经验。2015年1月至9月期间，在Mulago国家教学和转诊医院招募了陪同妇女进行手术的护理人员。照顾者参加了深入访谈和焦点小组。对数据进行了专题分析，并对概念框架进行了知情调整。在43名照顾者中，84%是女性，95%是家庭成员，大多数已婚并有正式工作。护理人员从事无数的个人护理和家庭责任，并描述了平均每天22.5小时的随叫随到。 出现了四个重叠的主题，突出了社会，经济，情感和身体的经验/后果。具体的照顾者的情况（如个人特征，他们的病人的护理需求）和动态的压力源/照顾者的社会背景下的支持，告知照顾的经验。这些结果表明，照顾者的生活的社会，经济，情感和身体的经验和后果的社会因素和个人特征的照顾者和他们的病人。这项研究可以为增加生育支持的方案和政策提供信息，同时减轻生育压力，以增强生育体验，并最终确保其可行性，特别是在资源有限的情况下。
This study aimed to explore the firsthand experiences of informal primary caregivers of women with female genital fistula in Uganda. Caregivers that accompanied women for surgery at Mulago National Teaching and Referral Hospital were recruited between January and September 2015. Caregivers participated in in-depth interviews and focus groups. Data were analysed thematically and informed adaptation of a conceptual framework. Of 43 caregivers, 84% were female, 95% family members, and most married and formally employed. Caregivers engaged in myriad personal care and household responsibilities, and described being on call for an average of 22.5 h per day. Four overlapping themes emerged highlighting social, economic, emotional, and physical experiences/consequences. The caregiving experience was informed by specific caregiver circumstances (e.g. personal characteristics, care needs of their patient) and dynamic stressors/supports within the caregiver’s social context. These results demonstrate that caregivers’ lived social, economic, emotional, and physical experiences and consequences are influenced by both social factors and individual characteristics of both the caregiver and their patient. This study may inform programmes and policies that increase caregiving supports while mitigating caregiving stressors to enhance the caregiving experience, and ultimately ensure its feasibility, particularly in settings with constrained resources.