Achieving Racial Representation in Food Allergy Research: A Modified Delphi Study.
Achieving Racial Representation in Food Allergy Research: A Modified Delphi Study.
复制标题
在食物过敏研究中实现种族代表性：改进的德尔菲研究。
DOI：
10.1016/j.jaip.2022.09.041
复制
发表时间：
2023
期刊：
影响因子：
--
通讯作者：
Gupta,RuchiS
中科院分区：
文献类型：
--
作者：
Bilaver,LucyA;Galic,Isabel;Zaslavsky,Justin;Anderson,Brigitte;Catlin,PerryA;Gupta,RuchiS
在食物过敏研究中，白人参与者的过度代表有助于研究问题和干预措施的发展，而不是由那些不成比例地受疾病影响的人驱动的。这最终限制了研究结果的普遍性，并影响了食物过敏和食物过敏管理知识的发展。目的提出建议，以打击不公平的研究范式，并增加种族代表性不足的人群参与食物过敏研究。方法本研究采用一种改进的共识发展方法，即德尔菲法，汇集了食物过敏临床医生、倡导领袖、社区参与研究人员和患者的专业知识。结果调查结果产生了四个领域的18项建议：社区伙伴关系、有意参与和信息传递、招聘活动和传播。结论：本研究的发现为食物过敏研究人员提供了具体的建议，以更严格地检查他们在招募和参与种族代表性不足的人群方面所做的努力，有效地从研究转变为研究与食物过敏个人和家庭的关系。
BackgroundThe overrepresentation of White participants in food allergy research contributes to the development of research questions and interventions not driven by those disproportionately affected by the condition. This ultimately limits the generalizability of research findings and affects the development of knowledge about food allergy and food allergy management.ObjectiveTo develop recommendations to combat inequitable research paradigms and increase participation of racially underrepresented populations in food allergy research.MethodsThis study used a modified consensus development method, known as a Delphi method, to assemble the expertise of food allergy clinicians, advocacy leaders, community-engaged researchers, and patients.ResultsFindings resulted in 18 recommendations within four domains: community partnership, intentional engagement and messaging, recruitment activities, and dissemination.ConclusionsFindings from this study provide food allergy researchers with specific recommendations for examining their efforts more critically toward recruiting and engaging with racially underrepresented populations, effectively transitioning from a research-on to a research-with relationship with individuals and families living with food allergy.