Are publicly available internet resources enabling women to make informed fertility preservation decisions before starting cancer treatment: an environmental scan?
Are publicly available internet resources enabling women to make informed fertility preservation decisions before starting cancer treatment: an environmental scan?
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DOI：
10.1186/s12911-018-0698-3
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发表时间：
2018-11-19
影响因子：
3.5
通讯作者：
Jones, G. L.
中科院分区：
文献类型：
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作者：
Mahmoodi, N.;Bekker, H. L.;Jones, G. L.
背景资料：为了确定公开可用的互联网资源，并评估其可能性，以支持妇女作出明智的决定，和之间，生育力保存程序开始他们的cancertreatment.Methods：一项调查，利用环境扫描的方法。将入选标准应用于三个数据源（2015年11月; 2017年6月重复）的检索结果：Google（Chrome）用于患者资源;临床指南和项目的存储库;联系患者决策辅助专家的分发电子邮件列表。数据提取表适用于合格的资源引出：资源的特点;知情和共享的决策组件; engagement health services.Results：4851条记录被识别; 24例患者资源和0例临床指南符合扫描纳入标准。大多数资源旨在告知癌症妇女有关生育保留程序和不孕症治疗方案，但不是选择之间的决策。有一个缺乏一致性的健康状况，决策问题和治疗方案的描述，和资源是难以理解的。结论：除非开发作为一个病人的决策援助项目的一部分，资源不包括组件，积极支持妇女的生育力保存的决定。目前的指南帮助人们在单一疾病途径中提供与治疗方案相关的信息;我们确定了患者决策辅助检查表的五个额外组成部分，以更有效地支持人们在健康途径中的治疗决策，将当前与未来的健康问题联系起来。
Background: To identify publicly available internet resources and assess their likelihood to support women making informed decisions about, and between, fertility preservation procedures before starting their cancer treatment.Methods: A survey of publically available internet resources utilising an environmental scan method. Inclusion criteria were applied to hits from searches of three data sources (November 2015; repeated June 2017): Google (Chrome) for patient resources; repositories for clinical guidelines and projects; distribution email lists to contact patient decision aid experts. The Data Extraction Sheet applied to eligible resources elicited: resource characteristics; informed and shared decision making components; engagement health services.Results: Four thousand eight hundred fifty one records were identified; 24 patient resources and 0 clinical guidelines met scan inclusion criteria. Most resources aimed to inform women with cancer about fertility preservation procedures and infertility treatment options, but not decision making between options. There was a lack of consistency about how health conditions, decision problems and treatment options were described, and resources were difficult to understand.Conclusions: Unless developed as part of a patient decision aid project, resources did not include components to support proactively women's fertility preservation decisions. Current guidelines help people deliver information relevant to treatment options within a single disease pathway; we identified five additional components for patient decision aid checklists to support more effectively people's treatment decision making across health pathways, linking current with future health problems.