Principles and indicators of successful consumer involvement in NHS research: Results of a Delphi study and subgroup analysis
Principles and indicators of successful consumer involvement in NHS research: Results of a Delphi study and subgroup analysis
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DOI：
10.1016/j.healthpol.2005.03.012
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发表时间：
2006-02-01
期刊：
影响因子：
3.3
通讯作者：
Cooper, C
中科院分区：
文献类型：
--
作者：
Boote, J;Barber, R;Cooper, C
消费者参与NHS研究是英国卫生部的政策。尽管存在政策指令和指导，直到最近，消费者和研究人员之间还没有就消费者成功参与NHS研究的意义达成共识。本文讨论了在这一政策领域的共识研究的价值，并提出了详细的调查结果的德尔菲研究进行了成功的消费者参与NHS研究的原则和指标达成共识。研究参与者，包括消费者，研究人员和消费者研究人员，确定使用目的抽样策略。就消费者成功参与NHS研究的八项明确有效的原则达成了共识，每项原则至少有一个明确有效的指标。分组分析显示，消费者、研究人员和消费者研究人员对原则和指标的评价几乎没有显著差异。本研究的意义和局限性进行了讨论。需要进一步的研究来评估：（1）原则和指标对于不同消费者参与模式、健康研究方法和健康研究主题领域的有用性;（2）“成功”消费者参与对健康研究过程和结果的影响。(c)2005爱思唯尔爱尔兰有限公司保留所有权利。
Consumer involvement in NHS research is Department of Health policy within the UK. Despite the existence of policy directives and guidance, until recently there has been no consensus among consumers and researchers about what it means to involve consumers successfully in NHS research. This paper discusses the value of consensus research in this policy area, and presents the detailed findings of a Delphi study carried out to reach consensus on principles and indicators of successful consumer involvement in NHS research. Study participants, comprising consumers, researchers and consumer-researchers, were identified using a purposive sampling strategy. Consensus was reached on eight clear and valid principles of successful consumer involvement in NHS research, with each principle having at least one clear and valid indicator. Subgroup analysis revealed few significant differences in how consumers, researchers and consumer-researchers rated the principles and indicators. The implications and limitations of the study are discussed. Further research is needed to assess: (1) the usefulness of the principles and indicators for differing models of consumer involvement, health research methodologies, and subject areas within health research; and (2) the impact of 'successful' consumer involvement on health research processes and outcomes. (c) 2005 Elsevier Ireland Ltd. All rights reserved.